
Chris1967 wrote:That would be very interesting as I am curious to know if anyone has truly had significant, life changing benefit as a result of their treating a diagnosis of ccsvi. I was treated in Bulgaria and would love to have a place to chat about it.
After my treatment I believe ccsvi is caused by other conditions, one of which is Multiple Sclerosis. I have had much change since the operation on May 5th and all for the worse. Very marked decline in disability.
Chris1967 wrote:That would be very interesting as I am curious to know if anyone has truly had significant, life changing benefit as a result of their treating a diagnosis of ccsvi. I was treated in Bulgaria and would love to have a place to chat about it.
After my treatment I believe ccsvi is caused by other conditions, one of which is Multiple Sclerosis. I have had much change since the operation on May 5th and all for the worse. Very marked decline in disability.
jerkbutt wrote:According to Holly,She would do anything for her symptoms.She know it wasn`t a cure but a relief from her progressive ms.
Cece wrote:jerkbutt, I am so sad for you, I don't know what to say. I did not know what to think but then last time you posted that she was on two blood thinners? I don't know of any doctors who are putting people on two blood thinners for this, that doesn't seem right.
Chris, if you post in Dr. Sclafani's thread, I wonder what he would suggest could cause this? It's the nightmare scenario, to go for this and get worse because of it. And of course after I type this I realize we're in the thread of someone who lost a loved one to this, which is beyond a nightmare.
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