This Is MS Multiple Sclerosis Community: Knowledge & Support

eveable you are a relative newbie so i don't expect you to have read every post i've submitted to the forum over the past four years. just so you know, i'm about to get evicted. i'm an outdoor environmental and recreation educator, not a supplement salesperson. i have recovered significantly through learning about and using supplements. i have a history of mis/malnutrition. i am so much more functional now than at my worst. my blood profile matches healthy controls, not the typical ms patient as it did originally. i use smart critical analysis of years to sometimes decades of science to arrive at my conclusions. both my doctor and naturopath have lost debates with me. no disrespect, but consultation with dietary/nutrition specialists was next to useless (they were university based and had no xp with MS demographic). nobody should think nutrition is everything. nobody should think ccsvi is everything. personally, ccsvi testing and treatment are pending. in the meantime i keep my blood profile looking like a healthy control, and i don't have relapses... other than increased symptoms which are unveiled through lab testing as deficiencies that i correct, and never suffer those symptoms again.

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Hi jimmylegs

I for one will thank you for all the help support and guidance you have given me.

I had my ccsvi screening at EHC with Dr Tom Gilhhooly he asked what vit meds i was taken I produce my list he was impressed for someone recently DX with MS I was taken good Vit - for this I thank you.

I have not been on any DMD or Steriods. Althugh I have been offered DMD but declined for now - this area I have not looked into and am unsure if its a good/bad thing refuseing DMD Im not an educated person and Im scared that my decision to refuse may back fire ....

EHC are big into Vit and LDN amongst other things and to get this complement from the top guy the floor is all yours Jimmylegs

Silverbirch

thank you very much silverbirch, that is very nice to hear.

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

PCakes, you're welcome

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

some more info

http://www.nlm.nih.gov/medlineplus/ency ... 000371.htm
Causes of thyroid nodules are not always found, but can include:
•Hashimoto's disease
•Iodine deficiency

http://www.ehow.com/about_5068314_thyro ... ptoms.html
No one knows for certain what causes thyroid cysts to develop, however, it is believed that the following factors may have some relation: a lack of iodine in the diet, an autoimmune disorder that causes inflammation of the thyroid (Hashimoto's disease), a genetic defect (JL edit: see D3 receptor polymorphism link below), exposure to radiation in childhood...

http://www3.interscience.wiley.com/jour ... 1&SRETRY=0
Vitamin D receptor gene polymorphisms are associated with risk of Hashimoto's thyroiditis in Chinese patients in Taiwan

http://www.ncbi.nlm.nih.gov/pubmed/19013357
Selenium status, sex hormones, and thyroid function in young women

http://www.liebertonline.com/doi/abs/10 ... .2007.0391
There Is Immunological Benefit of Selenium Treatment in Autoimmune Thyroiditis

-article link-
Estimation of Serum Copper, Manganese, Selenium, and Zinc in Hypothyroidism Patients
The results showed that serum zinc and selenium level of hypothyroidism patients are significantly lower (p<0.05) than the level in normal subjects.

http://thyroid.about.com/cs/hypothyroid ... vshypo.htm
Hashimoto's vs. Hypothyroidism: What's the Difference?
A Look at Autoimmune Thyroid Disease and Underactive Thyroid Conditions

that's all for now

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

I think that the thyroid cysts may be developed due to collateral circulation explained by Zamboni in his paper:
Venous Collateral Circulation of the Extracranial Cerebrospinal Outflow
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[quote="Cece"]Pcakes, your family certainly fits my theory. (My family is similiar. My dad has the allergies, my mom has the fatigue and some 'burning eyes' that sound like ON to me but no diagnosis; my healthy healthy sister has neither allergies nor fatigue; I've got the allergies & the MS.)

I saw that too about Albany but I think it might just have been a misunderstanding of what they said in the email, which is that they're not scheduling until it gets closer to the procedure time? I don't think they scheduled people past September. (It had been reported earlier that they were having too many cancelations and they considered a waste of staff time to have made all the phone calls and set things up. Cancelations being due to everyone being on multiple lists.) The other thing is that it wasn't clear which Albany doctor they were talking about.


By far the most common cause of "eyes burning" is a dry eye problem that can be very effectively controlled by taking 2-4000 mg of omega 3's daily ( as long as her pharmacist feels there is no contraindication with omega 3's ) and non-preserved artificial tears.
...gary

Hi, my first doplar in BC showed small lesions on my thyroid, and normal blood flow. I went to Poland anyway, and turns out my left jugular valve was mal formed, restricted blood flow and needed a stent.
They also discovered that I don't have lesions, but a cyst on my thyroid. My gp here will not put me on a list to see a specialist until I get yet another doplar (I paid for 2 already!) so I have to see what happens when I go to Barrie for my follow up.

Hi, my first doplar in BC showed small lesions on my thyroid, and normal blood flow. I went to Poland anyway, and turns out my left jugular valve was mal formed, restricted blood flow and needed a stent.
They also discovered that I don't have lesions, but a cyst on my thyroid. My gp here will not put me on a list to see a specialist until I get yet another doplar (I paid for 2 already!) so I have to see what happens when I go to Barrie for my follow up.

Hi Gary,
Thank you for the info. Sorry for late response..was away and missed it.
My mom complained of burning and pain behind her eye. It was the 'pain' that I now relate to my optic neuritis. If I push on my eye it hurts behind my eye.
I did not know of the eye/omega connection.

Monik_77 thank you for the Zamboni/thyroid link.
pCakes