Thyroid cysts...

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Thyroid cysts...

Postby PCakes » Mon Jul 12, 2010 6:58 am

Good morning..afternoon.. day.. night :)

How many out there had a thyroid cyst uncovered in there doppler scan? or were already aware of having them?

I've read this enough here now to say..sure seems to be a common issue and i've read that the thyroid is intrinsically tied to the venous system. So if venous flow is compromised resulting in thyroid cysts, resulting in thyroid disease and given that healthy thyroid function is critical to healthy life.. seems like a pretty good reason to resolve the problem? no?

(guess there is no proof of cause and trials would be needed ..sigh)
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Postby Cece » Mon Jul 12, 2010 7:16 am

I think so too...the CCSVI umbrella right now covers MS patients, CIS, optic neuritis, pars planitis, TM, CF, and thyroid sufferers, IMO. With some potential analagous benefit to Parkinson's, which may have a different sort of arterial/vascular problem.

(This is all speculation but what if CF (chronic fatigue) sufferers are the flip side of MS? MS is linked to genetic abnormalities in the HLA/immune genes and in the vascular formation genes. I am wondering if someone with chronic fatigue has just half of that equation: the genetic tendency toward vascular malformations, without the tendency to have the immune system have a strong reaction.)

The thyroid is highly vascular and it's right in the danger zone where the blood flow is wacky from CCSVI!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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tyroid cysts

Postby blossom » Mon Jul 12, 2010 7:33 am

cece, do you know if they check the thyroid when you get the ccsvi treatment? how do they treat thyroid cysts? surgery or what?
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Postby PCakes » Mon Jul 12, 2010 7:40 am

bingo! (highly speculative) .. immune/ thyroid/ connective tissue/vascular disorders gallop in my family.. i am the only one tested and returning a positive? (depending on the neuro i see) MS diagnosis.. i have always had allergies/overactive immune system.. my oldest sib - no allergies was diagnosed with chronic fatigue. hmmmm

You a very very smart woman :)

'nother note.. i read on facebook that there 'might' be a problem in albany? heard anything?
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Postby mangio » Mon Jul 12, 2010 10:06 am

Dr W.G. touched on this subject briefly in Calgary in her presentation.
She said many mser's have t. problems.

One member of CCSVI Manitoba had her thyroid checked recently
and a very large mass was discovered. I don't know if it was found to be malignant, haven't been following her blog lately. She's a nurse.

If you want to read more I can give you the address by pm.
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Postby PCakes » Mon Jul 12, 2010 10:44 am

Hi Mangio, please and thank you..

Hi Blossom, I can throw in what i know based on personal experience.. I am one of the many with thyroid cysts.. they were discovered as a sidebar to my ccsvi doppler scan (positive).. I then had to go through public healthcare for a rescan to get the cysts on record. I have two, they will be monitored every 3-4 months for changes and would only be considered for surgery if determined cancerous (they do not appear to be ptl) or troublesome.. (grew so large they had a profound impact on voice/swallowing/ thyroid health etc)

hagd :)
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Postby Ali888 » Mon Jul 12, 2010 12:43 pm

My husband and I both just had scanning and treatment in Alexandria, Egypt last Friday. They found a nodule on Joe's thyroid and told me my thyroid was extremly small. They even asked if I had had surgery to remove part of it. I never had any thyroid issues until I was on beta-seron. Anyone else had findings like this?
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Postby Cece » Mon Jul 12, 2010 2:40 pm

Pcakes, your family certainly fits my theory. (My family is similiar. My dad has the allergies, my mom has the fatigue and some 'burning eyes' that sound like ON to me but no diagnosis; my healthy healthy sister has neither allergies nor fatigue; I've got the allergies & the MS.)

I saw that too about Albany but I think it might just have been a misunderstanding of what they said in the email, which is that they're not scheduling until it gets closer to the procedure time? I don't think they scheduled people past September. (It had been reported earlier that they were having too many cancelations and they considered a waste of staff time to have made all the phone calls and set things up. Cancelations being due to everyone being on multiple lists.) The other thing is that it wasn't clear which Albany doctor they were talking about.

blossom, I don't know much about the thyroid, I think Pcakes answered your question better than I could!
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More thyroid nodules

Postby eveable » Tue Jul 13, 2010 9:48 am

Hi, I also had thyroid nodules found during my CCSVI scan. That was the first I knew about them. I also have had them scanned again and have had my bloodwork checked. Thyroxine levels are normal but the scan showed multi nodules, both sides. I am now being referred to a thyroid specialist. I can't wait until my date in Albany comes up. Then maybe I will be finished with this purple right foot that has no pulse and the thyroid nodules.
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Postby jimmylegs » Tue Jul 13, 2010 1:51 pm

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Postby PCakes » Tue Jul 13, 2010 3:08 pm

Jimmylegs..thanks!
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Postby silverbirch » Tue Jul 13, 2010 5:38 pm

9gabbycats reported thyroids clots were removed from her veins as part of the ccsvi treatment.

some were back in the thisisms forum is a thread on thyroids which also included a link to Dr Z's paper on thyroid and CCSVI

Some DMD require that you have a thyroid test prior to going on DMD drugs

Some DMD do cause problems with the thyroid glands which is why some msers are screened regulary as part of the risk of DMD...

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Postby 1eye » Tue Jul 13, 2010 6:11 pm

I don't think it's approved yet, but campath has a side-effect of thyroid problems. Definitely a DMD.

I am trying ice on my thyroid, now that I know where the thermometer in question is. Few tries yet, seems to work in hot sun.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby PCakes » Tue Jul 13, 2010 6:41 pm

what a great idea.. lo-tech .. cetainly worth letting everyone know the results..
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Supplements

Postby eveable » Wed Jul 14, 2010 2:20 pm

Hi Jimmy, sorry to be a crank but I just hate when I see you post those supplement lists. Makes me think that you sell supplements.
I am a dietitian. Yes, here in the great lakes basin we need iodine. That is why it was added to salt in the 1920's. We may need selenium also though for people living in mountainous regions, it could cause toxicity. I should hope we all know now how much Vitamin D to take, somewhere around 4,000 IU daily though I have seen recomendations for more.
I suggest that eveyone take a multi vitamin mineral daily though I am trying to take one without iron now. Most of us need more Vitamin D and calcium but other than that everything is in the multi vitamin mineral pill.
Supplements will not cause thyroid nodules or cysts to go away. Proper blood flow may.
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