Help! Need opinions

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Help! Need opinions

Postby suzq77 » Mon Jul 12, 2010 7:50 pm

I think I've restenosed - look at the right side (which is the left, because it's flipped). My IR had to balloon 4 times. I just got this today - 24 days post-procedure.

What does everyone think?

http://www.flickr.com/photos/18565585@N00/4789004356/

Thanks for your opinion!

susie
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Postby suzq77 » Wed Jul 14, 2010 6:40 am

101 views and no replies? C'mon guys...
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Postby Algis » Wed Jul 14, 2010 6:49 am

Susie: honestly the picture is too small. And only 1 view might be not enough.

And it is a personal opinion; am not qualified anyway 8)
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Postby costumenastional » Wed Jul 14, 2010 6:51 am

Sorry girl but that pic ain't the best possible. Not to mention that the middle and lower part of your jugs are not visible. I could be wrong though.

One can only see that the other vein is the dominant but i doubt that a stenosis can be seen here. Dont panic. Just saw this to the doc who operated on you.

BTW, have you noticed any changes post op?
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Postby suzq77 » Wed Jul 14, 2010 7:48 am

Yeah, I know but that was the only way I could figure out how to upload it.

Thanks for your input. I'll find out for sure this afternoon at my follow up appointment...
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Postby costumenastional » Wed Jul 14, 2010 10:56 pm

Hope we ll hear good news from you ;)
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Postby suzq77 » Thu Jul 15, 2010 7:23 am

Ok, so I was totally wrong - but not in a bad way. All three areas that were ballooned are still open except for a slight stenosis in my upper left IJV (not enough to go in and fix unless there's something else).

Here's what he found on my MRV - my right sigmoid sinus (see this link; it's labeled "PARS SIGMOID": http://en.wikipedia.org/wiki/File:Gray488_blue.gif) is ALMOST COMPLETELY OCCLUDED - to the point where all of the blood is draining on the left side. He said it's something he can fix and while he's in there he'll also look at my upper left IJV and balloon again if needed.

He didn't see it on the venogram because he was only looking at my jugulars - the highest he went was right below it.

He also said that it will definitely need to be stented and that at some point in the future (years), so will the upper left jug.

He's going to the professional symposium on the 26th and will talk to one of the doctor's about my case. I'm going to follow up with him that week when he gets back and he said we can do it in August or September.

This is so freaking exciting! I was totally off base - but that's ok. It can be fixed!
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Postby Algis » Thu Jul 15, 2010 7:28 am

I am so glad Suzie :) Be well!!
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Postby costumenastional » Thu Jul 15, 2010 11:42 pm

EDITED
Last edited by costumenastional on Thu Jul 15, 2010 11:48 pm, edited 1 time in total.
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Postby costumenastional » Thu Jul 15, 2010 11:48 pm

suzq77 wrote:He didn't see it on the venogram because he was only looking at my jugulars - the highest he went was right below it


WOW! Thanks for that. Please, keep us in the loop here whenever you decide to go ahead with this. First time we hear about this in this forum. I wonder if he will use a balloon there. Some of us should be very curious to see how this will go.
Good luck!

ps: very cool this doc of yours...
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Postby suzq77 » Fri Jul 16, 2010 5:51 am

Will do!

I do know that he said it will definitely need to be stented...
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Postby costumenastional » Fri Jul 16, 2010 6:13 am

Right!! My bad :roll:
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