Well, the odd thing about my situation is this....for four years I have had fatigue issues (about once a month) and pain behind my right eye.....eye doctor said nothing was wrong. Went to my family doctor numerous times to be checked and last year I had two weeks of tingling and being off balance. I went to emergency because the tingling was from head to toe. They sent me home, I went back to my family doctor who told me it was all due to stress and gave me anti anxiety pills (which I didn't take because there is nothing wrong with my mind!). I finally asked the doctor to give me a referral to a private MRI clinic and paid $ 800 of my own money to do so because I felt something was srong. She tried to discourage me but I didn't give in. The MRI showed three white spots.....went to two neurologists and had a spinal tap that showed only one banding (they say they need two to make a diagnosis). They also said the spots on my brain are not really in the place where they usually see it in MS patients. So, after a year of going to emergencies, family doctor, neurologists, they have been unwilling/unable to diagnose me. I was upset at first because I wanted to get on some kind of drug asap to avoid deterioration, but the neurologist said he didn't want to put me on drugs until I deteriorated! I have to go back in a year for a repeat MRI to see if there is any change. If there is they can then diagnose me.
I have changed family doctors after she advised me to go see a psychologist. This was after I asked to be tested or Lyme disease, Lupus, and adrenal gland issues. My new doctor is quite eager because she is young and she did not hesitate to give me a requisition for CCSVI testing in Toronto.
So, since I have not formally been disgnosed with MS, and if my CCSVI testing shows blockages, I will attempt to see a vascular surgeon in Canada as it is just a vascular issue! I noticed that when applying to go to Bulgaria they ask about date of diagnosis with MS etc...I guess in that situation I can fib?
Any comments on this???? and is anyone else in a similar situation