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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

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Postby codefellow » Tue Jul 13, 2010 8:58 am

Assuming I can bring my GP on board to be an advocate for getting my wife's veins tested, I want to be sure I do this right.

What would the GP have to say in order to justify having her veins tested without mentioning MS?

Will an IR have to have been trained by Zamboni in order to spot CCSVI? That seems to limit my options.

If not, to where would I refer my GP and IR so the IR can learn the Zamboni protocols for diagnosing CCSVI?

Thanks for your assistance.
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Postby Cece » Tue Jul 13, 2010 9:10 am

Does your insurance require a referral from a GP? Crazily enough, mine did not.

Some of the symptoms of CCSVI apart from MS might be headache, neck pain, cognitive issues, fatigue and weakness. (Unproven.)

No, your IR won't have to have been trained by Zamboni. Check the research sticky, the protocols might be up there?

Best wishes with this!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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...unfortunately....

Postby codefellow » Tue Jul 13, 2010 9:13 am

...my wife's insurance is medicaid.

(It is the only insurance that will pay for her caregiver.)
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