Best U.S. Option?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Best U.S. Option?

Postby selkie » Tue Jul 13, 2010 12:21 pm

Hi all,

I haven't been able to check here for quite some time as I'd given up on being able to get the Liberation procedure as I'd been diagnosed with another potentially fatal neurological (actually ENT) disease.

As it turns out, these doctors are either wrong or don't know what's going to happen, and after 6 months of being in Limbo & given all kinds of scary scenarios, I'm still alive and still consider MS my worst health problem.

So, I'm thinking I'm going to go back to pursuit of the Liberation procedure and whatever happens with this other illness is unknown at this point.

I'm in Hawaii and hoping to find an IR as close to me as possible, if that is my best option.

I've read here of Dr. Arata in Southern Ca and also the Albany clinic. Someone mentioned a doctor in Maryland on one page. So, I'm noting these options but I'm wondering if there are others I may have missed?

As I know some doctors don't want their names posted in forums because of the IRB and frankly, I thought they'd shut all the U.S. people down, so I'm thrilled to find out some people are still able to get treated by an IR. If you know of someone, particularly as close to the West Coast as possible, please PM.

Otherwise I'll try the contacts above. I'm not anxious to go to Poland, Bulgaria, or India, but frankly at this point, I feel if I don't pursue the Liberation technique, my quality of life w/continue to decline.

Thanks in advance for your help & suggestions. Feel free to PM me.

Sorry this is so long, but wanted to explain why I've been out of the loop for so long.

Thanks again.
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Postby selkie » Tue Jul 13, 2010 1:12 pm

oops - I'm sorry - I thought this was being posted in the U.S. subforum? Can this be moved? I'm sorry!
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Postby gothicrosie » Tue Jul 13, 2010 6:41 pm

There is also the Hubbard Foundation in San Diego: http://www.hubbardfoundation.org/multip ... uling.html
Best,
Rosie
My blog: http://gothicrosie.wordpress.com/
transverse myelitis May '07 & optic neuritis Oct '07
DXd RRMS Dec. ‘07: No lesions & 3 OG bands
Hubbard MRV scan Jun. ‘10/CCSVI Jul. '10
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Postby selkie » Tue Jul 13, 2010 7:02 pm

Thank you so much - I'd heard of this but couldn't find it on google. Thank you! Aloha, selkie
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Postby gothicrosie » Tue Jul 13, 2010 7:09 pm

You are most welcome ('A'ole pilikia) ;)
Best,
Rosie
My blog: http://gothicrosie.wordpress.com/
transverse myelitis May '07 & optic neuritis Oct '07
DXd RRMS Dec. ‘07: No lesions & 3 OG bands
Hubbard MRV scan Jun. ‘10/CCSVI Jul. '10
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gothicrosie
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Posts: 55
Joined: Thu Jul 01, 2010 3:00 pm
Location: California


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