[quote="eric593"]So sorry this has happened to you, LR. Such a good reminder that our veins can be finicky. Please please please feel like you can come here and share. This is YOUR SUPPORT forum too]
THANK YOU, LR, for sharing, what must be a very difficult experience to write about. You are brave and generous to share your story with this community because I feel it IS meant as much for people like you as it is for the wonder-kinds who have had great results,
I had a venoplasty 2 weeks ago of my left upper jugular vein which was 45% blocked. It was opened twice with a balloon. Other IJV was also ballooned, tho it had little blockage; azygous veins were checked and looked 'normal.'
I wasn't told to take aspirin, or anything else post surgery.
My IR doctor found many blockages in my brain veins, ''too numerous and too small' to open.
This might be why I had no improvements post-balloon treatment of my IJVs? I remain heat intolerant, more fatigued than before the procedure, still have leg and foot pain, brain fog/short term memory, etc.
I wish you the best, and pray you will find tons of support here and among all your friends and loved ones as you await the next step in your treatment.
Dx'd R/R Aug 1989 S/P since 2000
Not on any DMDs
I wish I knew how to get the iron out of my brain