This Is MS Multiple Sclerosis Community: Knowledge & Support

Alzheimer's disease has long been studied primarily as a disease of neurons. But researchers have now shown how the disease may be damaging the brain by choking off blood flow.



source: http://www.sciencedaily.com/releases/20 ... 152744.htm

and here is the paper: http://www.ncbi.nlm.nih.gov/pubmed/20547128

it's not about CCSVI, it's just another possibly misdiagnosed neurological condition whic turns out to be vascular in origin. We are not alone!

Fantastic news another team on board lets see if the Neuro's try and stop this one

Will the IRB be running to treatment rooms to stop procedure ?? neuro are going to be very busy ignoring the request of Alzheimer's and ms paitents in CCSVI see no ccsvi speak no ccsvi and hear no ccsvi

Nobel P

There is some big thing going on in the US right now with the way Alzheimer's is going to be diagnosed in the US - personally I haven't really paid attention to it, but it's been on the Wall Street Journal radio program these past few mornings as I drive to work.

I'm not sure of the details, but something is going on ...

Maybe someone can dig and find more information.

is there a way the authors can be contacted and provided info about ccsvi?

One of the recently awarded trials in the USA to test CCSVI is going to explore its connections with Alzheimer's:

•Dr. Robert Fox Cleveland Clinic, Cleveland: studying people with MS or who are at risk for MS (CIS) and comparison groups including healthy volunteers and people with brain atrophy (shrinkage) from Alzheimer’s disease. This team is using the ultrasound techniques originally used by Dr. Zamboni, as well as magnetic resonance studies of the veins (MR venography), MRI scans of the brain, and clinical measures to determine MS activity and atrophy. They are also examining neck and spinal cord tissue from MS patients at autopsy to provide a tissue-based evaluation of CCSVI and its possible relationship to MS.

Dr. Mark Haacke has just started the International Society of Neurovascular Diseases. He is contacting like minded professionals around the world--utilizing state of the art technology to find vascular connections to other neurological diseases.

I posted on a note of Facebook regarding research that came out this week re: Parkinsons and dementia as related to vitamin D, the vasculature and brain atrophy.
Here it is:
Vitamin D in neurovascular disease

Also--the Endothelial Health program I created for Jeff discusses ways to help supplement the diet to relieve fibrin and inflammation in the circulatory system. It's how this all started for me:
http://www.facebook.com/note.php?note_id=123456602210


exciting times, indeed-
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

My guess is that they aren't studying Alzheimer's with an open mind to see if there is vascular involvement. If they found CCSVI in both, this would be used to assert the conclusion that the brain atrophy causes malformation or damage to the veins? But I do not think they are likely to find CCSVI in Alzheimer's, because Zamboni looked and didn't find it in other neurological diseases IIRC. Although who knows what they'll find. I don't hold out much hope that they'll have training in Zamboni's methods before they set off to discredit him.

I cannot wait to support Dr. Haacke's Society of Neurovascular Diseases. If CCSVI gets proven, then MSers are the lucky ones, they found the vascular connection for our disease...but if there are vascular connections to these other diseases, then there is hope there as well.

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

I agree with you Cece, some docs will be studying the connections between CCSVI and other diseases to discredit the potential link between MS and CCSVI.

Zamboni tested the link between CCSVI and other conditions (but not all, there are so many around). To my knowledge he only tested:
Parkinson disease
Amyotrophic lateral sclerosis-ALS
Myasthenia gravis
Multifocal motor neuropathy (MMN)
Ischaemic stroke
Transient ischaemic attack (TIA)
http://jnnp.bmj.com/content/80/4/392.full.pdf

He did not find evidence of CCSVI among these conditions. The Univ Buffalo has explored other conditions, and they did find 40% incidence of CCSVI among other diseases (sarcoidosis, hashimoto, epilepsy and apparently 'others' to be disclosed once his findings get published).
http://www.facebook.com/profile.php?id= ... 2347471856

I don't think it is a good idea to mix both things at this moment. It would produce suspicion and rejection. Any "hope monger" that tries to sell a treatment usually says that it is good for everything.

Even if there is a connection between CCSVI and other diseases, time will put things in their context.

At this moment there is a battle front which is to show a connection between CCSVI and MS. It is not good to fight in two fronts at the same time.

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You can get a worldwide list of available sites for CCSVI at http://www.ccsviclinic.info

ccsvihusband wrote


http://www.nytimes.com/2010/07/14/healt ... 7s+&st=nyt

I agree spreading too thin may mean more delay. But it does seem this is a new or at least neglected area of human pathology different from but related to auto-immune and other diseases. Glad there are people working on it. I may (or my wife, or kids, or other loved ones may) be so unlucky as to get Alzheimer's.

I think one mistake is to put people in an "already diagnosed, no further progress possible" box, from which they have a hard time fighting their way out. Patients should be the only ones to authorize DNR orders. Themselves, no-one else. Everything is cureable, except death and taxes.

Just some things are less so than others at the moment. But we're getting there.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

dr. noda had very good results with his ctos treatment for ms, alzheimers and other diseases. even though this was to relieve pressure on the arteries and ccsvi is veins it still impacts flow of blood and bad blood flow anywhere is not good. the response to ccsvi treatment varies so much that i hope the good doctors start looking at this as they are trying to figure out why ccsvi treatment works for some and not others. this is all the tip of the iceburg and it looks like a lot can be helped or cured that does not involve a bushel basket full of drugs. even hughes syndrome is cheaper to fix and they may find that all of these come into play with some people. getting ccsvi off the ground is a fight-can you imagine if this pans out.

cece, i just donated to dr. haacke research. i'm having a senior moment combined with ms moment. it had to do with haacke, sclafani,siskin and hubbard. i think the site to donate was on ccsvi locater. all these researchers are gonna need our support because it don't look like the ms society or govt. will anytime soon. if ever. surprise surprise!!

Here is the link to the fund-raiser blossom is talking about:

http://mrimaging.com/category.102.html

There is a flyer on that page with the information on the fundraiser, with Dr. Sclafani, Dr. Harvill, Dr. Haacke and Dr. Hubbard in attendance. August 7th. (Wish it were MN instead of MI!) Please circulate the flyer if you know anyone who might be interested.

Registration or donation through PayPal is through the above link as well.

I have been having 'senior moments' since I was twenty (thanks MS, always a pleasure)...I hate to think how it gets when I truly get senior!

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition