This Is MS Multiple Sclerosis Community: Knowledge & Support

Can anybody tell me about medications after CCSVI treatment please? I've read that these are injected into the stomach? Does everyone need this? I'm going to Poland in a couple of weeks and I'm wondering who will prescribe any medications when I get back? This is my first 'go' at this , so I hope I'm in the right place. I can't find anything on the search.

Hi eyebrow,

I believe you only need the injections in the stomach if you have had stents put in, you only need 7 days worth which you get in poland.
My wife had these and actually wasn't too bad. Only the people with stents were given this.
You will also get prescription for 3 other drugs(one of these is aspirin).
You should get 2 months worth of these.
There is one of the drugs that you are recommended to continue for 1 year, sorry forget which it is but we get it from our Doctor without any problems.

Sorry not sure are you from the UK?

If so remember to bring a EU medical card if you have one, if not get one as you get a big discount on these drugs.

Hope this helps

I got the injections (Fraxiparine) for 20 days after ballooning in Belgium. No problem.
After this, no aspirine (Asaflow for instance) was needed.

Just follow your doctors' prescriptions....

Hi LivabirdsHubbie,
Thanks very much for your reply. I was a bit worried about it 'cos I don't think my GP will be quite so easy going.
Yes, I'm in the u.k. where we have our own species of Liverbird. Is your wife from the same species?

Hi Joge,
Thanks for your answer. I just hope I can get the prescriptions.

Hi,

I was liberated in New Delhi, India. I was ballooned only, no stents. Put on Clexane (Heparin) for 3 weeks. I am in the States, it is easy to get here but was cheaper at the hospital pharmacy in India so we got it there.

It does get injected into the abdomen my husband does it for me.

Hello Eyebrow,
Medication after therapy depends on the the procedure (stents or venoplasty) and your medical history including cardiovascular disease in your family. You must discuss this with the surgeon/doctor who performs the procedure and follow their advice.
A prescription from an EU doctor is valid in all EU countries but drug prices vary across the EU. Online pharmacies are usually the cheapst supplier but only use a pharmacy which is registered in your country of residence, not an offshore one.
I am using Cleaxane (Enoxaparin) 20mg/0.2ml s/c for 30 days after balloon venoplsty. This is not a usual dose but was agreed with my surgeon.
Make sure you have a prescription and instructions from your surgeon/doctor, especially if your GP is unhelpful.
kind regards,
MarkW

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

Hi eyebrow,
Yes my wife Livabird is from liverpool originally although they immigrated to canada when she was 7 years old, so canadian accent now
You should have no problems getting the drug as it is on the NHS.

Hope all goes well...

I took tiny little warfarin pills for 3 months. Maybe a month of plavix. 81 mg aspirin to date. My stents are smooth and flowing, no problems. Every country and Dr. is different in this approach. I'd be wary though of no medication at all, esp with stents but even with angioplasty. Mark.

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RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap

Hi eyebrow,

As you are going to Poland, just a word of advice... depending on your MS, if you are PPMS or SPMS, make sure they pay special attention to the azygos. We don't think this was done with us, although they said they were fine, we are not convinced, and because of this we are starting all over again and going to Bulgaria in October.

They are very good in Poland, i just think they do not do the azygos as much, this does take longer and more fiddlier to do.