Hate to add to the dismal state of affairs in Canada - a Beautiful place to live, a terrible place to be with MS - but I had a similar talk with our Family Doctor although he is open to giving any info about my Wife's condition to any Clinic where we might be lucky to find treatment.
I also just got a reply from our Member of the BC Legislative Assembly
(that's our Provincial Parliament for those not familiar with Canada's political system); I had asked him some very pointed questions re getting treatment via the Provincial Medical Services Plan, what he though about the Government of Kuwait recognising CCSVI etc, etc (you all know the questions we can ask thanks to TiMS education), his reply -
"In my previous letter to you, I outlined the possibilities and dangers of Dr Zamboni's treatment, an experimental diagnostic test and an experimental surgical procedure for MS called CCSVI. As well, I noted that Dr Zamboni, who pioneered this research, has cautioned that people with MS should not rush to seek the surgical procedure outside of proper clinical studies.
In this case, I will trust the opinion of the College of Physicians and Surgeons in B.C., who must ensure that physicians practice safe and ethical medicine. At this time, they agree with the Ministry that there is not enough evidence to support this procedure".
So it's not just the MS Society "poisoning" the minds of our Politicians but also the leaders of the actual "doctor's union".
We are still waiting for my Wife to get treatment, possibly (and hopefully soon) in NY, still getting more info on Mexican Clinics, but once she's had the treatment, and hopefully it is successful in giving her some improvement, I'm going to be so tempted to take the letter I just received and ....... no you don't want to know what I'll be tempted to do!!!!!