I am glad for all who have shown improvements. Wonderful.
But going on with your life should include surveillance to assure that restenosis does not result in recurrence.
So can you tell me, how you are being tested for this
doppler? MRV? clinical examinations?
Who is following your progression?
Are you compliant with followup advice?
I do take my pradaxa and daflon every morning and every night.
I am lucky enogh to have a great GP that is keeping an eye on my bloodlevels for any side effects from the medication. I see him on regular basis, and he is doing a good job of it.
I will also continue my annual chat/examinations at the neurology department, and have yearly mri scans for ms development. Hospital was not interested in giving me any more examinations cause of my ccsvi and procedure.
I have emailed the national center of vascualr disease, they can not offer me any sort of tratment or follow-up examinations before liberation has been recognized as a standard procedure and the neurologists have given the go ahead. It can be years.
I have allready been back to Bulgaria after I started feeling worse and actually had a relaps after procedure. They gave me an apointment within a week, and I was very happy with that.
It is costing a bit of money, and it is inconvenient to travel to other side of Europe to have medical treatment on a regular basis. But on me it is not to bad, it is relativley close, and it is affordable, I have support network to help take care of the little ones, and I have good enoguh health to cope with traveling. I do realise it is not as easy for most MS patients.
I will contine with everything they can offere me here untill CCSVI and liberation is recognized as standard treatment, and continue traveling to Bulgaria when needed. I know I am more or less on my own here now, but I do think it will change sooner or later. With results like this they can not keep it from us for ever.
Might ask you a question or two as well if I feel the need
Thank you for beeing around it is great!
<div>I have lived with ms for 8 years. The last year has been hell, I've gone from shite to even worse every single month, until my liberation in May. </div>