A treatment for multiple sclerosis that upsets Big Pharma

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Lyon » Fri Jul 16, 2010 2:25 pm

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Postby CCSVIhusband » Fri Jul 16, 2010 2:28 pm

CCSVI is REAL ... Post removed by user
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Postby Lyon » Fri Jul 16, 2010 2:35 pm

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Postby PCakes » Fri Jul 16, 2010 2:38 pm

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Postby cheerleader » Fri Jul 16, 2010 2:43 pm

PCakes wrote:http://www.youtube.com/watch?v=UE6iAjEv9dQ



not a country fan, but that is HI-larious, pcakes.
thanks for the much-needed laugh
have a great day, all...going out in my maserti :)
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby CCSVIhusband » Fri Jul 16, 2010 3:00 pm

I certainly hope that's about the other guy ... cuz I'm exactly the same offline ... I have a feeling the other guy isn't :roll:

Like I said ... he's not worth dragging another thread down on ... that's the only reason I deleted the posts - (believe me, I very strongly believe every word in them).
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Postby PCakes » Fri Jul 16, 2010 3:06 pm

welcome.. :)
laughter..best medicine of all!
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Postby Lyon » Fri Jul 16, 2010 3:12 pm

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Postby Trish317 » Fri Jul 16, 2010 5:58 pm

Lyon wrote:
CCSVIhusband wrote:You can leave them quoted if you like, or you can take the high ground like I'm going to try to do. Up to you ...
Personally I find the "high ground" is editing as little as possible.


Who's the guy in your avatar picture, Lyon?
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Postby L » Fri Jul 16, 2010 6:10 pm

Trish317 wrote:
Lyon wrote:
CCSVIhusband wrote:You can leave them quoted if you like, or you can take the high ground like I'm going to try to do. Up to you ...
Personally I find the "high ground" is editing as little as possible.


Who's the guy in your avatar picture, Lyon?


I think it's the man himself.
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Postby Lyon » Fri Jul 16, 2010 6:21 pm

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Postby Trish317 » Fri Jul 16, 2010 6:30 pm

Lyon wrote:It's a picture of Brad Paisley and since this is cyberspace you're supposed to wonder if I'm really Brad Paisley who is just pretending to be a hick or if I'm really a hick who is pretending to be Brad Paisley.

I've gotten myself mixed up during the explanation so even I am not sure anymore.


oh....lol! I'm not a country-western fan but I know who Brad Paisley is. Actually, I was just wondering who the HOT guy is. :D
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Postby scorpion » Fri Jul 16, 2010 6:38 pm

I am curious if people truly think the "pharmas" sit around all day worrying about CCSVI? I mean the way it sounds on here it is like there the big "pharmas" have developed a secret commission to try and figure out ways to discredit CCSVI. MS is a rare disease and although there is money to be made from us it certainly pales in comparison to other diseases such as diabetes and heart disease. I have a friend who works for Pfizer and he has never even heard of CCSVI. This is not a post to discredit CCSVI but I really do not think the "pharmas" are overly interested in discrediting CCSVI.
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Postby L » Fri Jul 16, 2010 6:57 pm

scorpion wrote:I am curious if people truly think the "pharmas" sit around all day worrying about CCSVI? I mean the way it sounds on here it is like there the big "pharmas" have developed a secret commission to try and figure out ways to discredit CCSVI. MS is a rare disease and although there is money to be made from us it certainly pales in comparison to other diseases such as diabetes and heart disease. I have a friend who works for Pfizer and he has never even heard of CCSVI. This is not a post to discredit CCSVI but I really do not think the "pharmas" are overly interested in discrediting CCSVI.


I don't personally believe that big pharma is attempting to discredit CCSVI (I am a very trusting person who believes that everyone has my best interests at heart), but the people who do believe so aren't talking about Glaxo, for example, they are talking about the likes of Biogen and Teva who rely on MS drugs for their income. I would imagine that they are concerned. They would be crazy to be looking for a cure and something that could possibly turn out to be a cure must worry them somewhat. Imagine, for a start, what will happen to their shares if it proves to be the case that people do not require expensive weekly injections. Imagine what will happen to their income. They would be foolish not to be imagining these things themselves. We are their bread and butter..
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Postby eric593 » Fri Jul 16, 2010 6:59 pm

Surprisingly, Big Pharma seems to have been very quiet about this.

The only comment I have heard is positive, where the makers of Gilenia (I think?) commented that Gilenia may be a good interim treatment until vascular treatment gets up and running and the research results are in.

That's the only Big Pharma comment I've heard.

Does anyone have any other comments that have been made?
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