I think I also maybe belong to this "group". I have one stent in my left jugular and my bloodflow is very low.
We still do not know why. I am in touch with Dr. Simka. I plan to have my next follow up in October/November.
My legs are quite OK but my main problem is still in my head - right now I have the feeling of swallen brain and headache - I have it always in hot weather. I still have strange pressure in my head and still problems with my vision (eye nerves). I am still dizzy...
One symptom is gone completely for sure: my neuropathic pain in my right arm.
I think I would be able to walk without cane in case these symptoms from my head go away.
Well, I must be patient, I know some doctors are working on this mystery as well.
These problems are not new. I have had it for more than 10 years.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse