adamt wrote:I had a Catheter venogram and the interventional radiologist said my venous system was fine & just like a normal persons.
but after showing Dr Sclafani my images he believes i have May hurners, CCSVI of the jugulars and possibly the azygos, and that the lumber veins are poorly developed
adamt wrote:as i will be having testing/treatment soon, is it wise to ask the doctor to enter through the left side and treat May thurners aswell as the CCSVI
or would it be better to get the CCSVI treated first then in a separate procedure have the M-T treated?
newlywed4ever wrote: On 8/5, I was treated in Albany. I had 100% blockage in left IJV and azygous issues (both ballooned). Afterwards, Dr S told me that he thought he had seen the worse MayThurner - until he saw mine!! However, he indicated that my body had effectively dealt with this and he recommended doing nothing. Btw, it is my right leg/foot that is affected.
I discovered a condition called Nonthrombotic Iliac Vein Lesion.(NIVL).http://www.phlebolymphology.org/2009/07/iliac-vein-outflow-obstruction-in-primary-chronic-venous-disease/
It encompasses May-Thurner syndrome but it can be present on both left and right side. The paper explains that it is present in 66% of general population, using venography you can miss 50% of these lesions, but using IVUS you can diagnose >90% of the problems. It is a permissive lesion, not causing problems in healthy individuals but worsening preexisting conditions.
The reason I think this is important is that entering on the left side might miss the right side lesions and some of the left side problems too unless IVUS is used.
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