CCSVI & Stem Cells

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI & Stem Cells

Postby ariehs » Sat Jul 17, 2010 9:33 am

In December I received a course of Stem Cell Therapy in Greece by Dr. Slavin's (Israel) Protocol.

Since then I've experienced SIGNIFICANT improvement.

I'd had a head & neck MRV in November, and another in March. In march it was at False Creek, where they're scanning for CCSVI, but in November, it was just at an MRI clinic where they did not study about CCSVI at all.

In looking at the images, I can see a difference, but I am not an expert at all.

I know that stem cell therapy has been used in several cases to improve blood flow. I've read about stem cell therapy basically curing heart disease and being used to prevent the need for hip-replacements through improving blood flow to an almost necrotic hip.

While Cell Therapy *is* remyelinating, I wonder if it is also addressing CCSVI. Does anyone know if there is anyone researching this? Can anyone suggest to whom I can send my before and after stem cell therapy MRVs to?
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Postby ikulo » Sat Jul 17, 2010 10:27 am

Ariehs - I went to greece in February for stem cell infusion with Dr. Slavin. At that time I asked the doctor about CCSVI. He didn't know much about it then, but he probably knows more by now. When I asked him about the possibility of stem cells "healing" the injured veins he speculated that it could be possible, but didn't actually know for sure. Certainly it would make sense that mesenchymal stem cells which have tremendous healing power would also heal other parts of your body. I would maybe try contacting Dr slavin, or even dr gesundheit (however you spell it) and asking them. They may have an interest in studying how MSCs can improve CCSVI in order to market to liberated patients.
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Postby ariehs » Sat Jul 17, 2010 11:39 am

ikulo - Dr. Gesundheit was the first person I asked about this, just a couple of months ago. He acknowledged the possibility, but said they weren't up to date on CCSVI, and since neither of them is an MS specialist or a vascular specialist I'm not sure if they're the right people to go to about this sort of question. They are probably VERY interested, but not ready to take this question on themselves, yet.
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Postby BadCopy » Sat Jul 17, 2010 11:49 am

@ARIEHS

Mind if I ask about your stem cell treatment? I am a newby when it comes to Cells. Did they injact, IV or ? Did they wipe out your immune system first? What kind and whos stem cells used?

I am very curious because I am going in August for test/treat CCSVI. I have thought that maybe after having the veins fixed there is a chance that stem cell therapy may help repair the damage that has been done.

Are you still doing better or have the symptoms returned? Where would I go to get the best, most reliable info in this area?

Thanks
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Postby Daisy3 » Sat Jul 17, 2010 1:26 pm

Hi Ariehs,

Really good to hear that you have had significant improvements:-)
I think you have mentioned it before, but tell again what MS type you were diagnosed with?
Your treatment must have been expensive to:-/

Still....we can re-mortgage the house if need be:-)
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Postby ariehs » Sat Jul 17, 2010 7:20 pm

Daisy3, I have a thread all about it under the stem cell heading, but I'll give a brief recap.

I was diagnosed in June '09 with RRMS. I had been ignoring symptoms for a very long time.

The aspiration was in Tel-Aviv, in July '09, but because of a lot of uncontrollable problems, they couldn't give me the infusion until December. The cost (not including flights and hotels) of the procedure was USD$28,000. I had more access to Drs Gesundheit and Slavin, at a lower cost, because I was an Israeli resident at the time, but next to the cost of the procedure, it was a very minor saving.

I have been following the MS Recovery Diet, taking 4.5 mg Naltrexone daily (L.D.N.), and between the three I have been doing very well, and I am very optimistic. I'm looking into Alemtuzumab (Campath-1H), just to be safe, but I haven't made a decision on that yet.

My philosophy on treatments is that if there is any real evidence that it works, and I can be reasonably sure of it's safety, then why not try it. My primary neurologist is very honest about treatments, even if he thinks I'm a bit crazy. I've met several MS specialists who just lie about treatments, or others who don't know what they're talking about, so I'm glad to be working with him.
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stem cells

Postby blossom » Sat Jul 17, 2010 10:10 pm

ariehs, i do not know of anyone researching ccsvi and stem cells. but i hope they are. i was going to try stem cells but ccsvi came up and my condition is pretty bad (ppms) and travel and all i hope after liberation to stop progression and get some relief and then get stem cells to help repair. anyway, i found this info. - i called this dr. then tried to set up a way to talk with him about ccsvi like a phone consultation pd. with credit card thing. he only sees you with an appointment and i could not get an e-mail address. right now i can't make a trip like that but would be willing to later. the nurse was supposed to relay my message which was a brief about ccsvi. i'm going to try to get something mailed out to him. WHAT THIS DR. IS DOING WITH STEM CELLS AND VEINS HAS TO DO WITH THE LEGS BUT STILL IT SHOWS THAT VEINS RESPOND TO STEM CELLS AND INDUCE HEALING OF VEINS. IT IS PRETTY AMAZING. SO PLEASE GOOGLE--" STEM CELLS SAVE LEGS COLUMBUS, OHIO" there are different sites to go to telling about this. just hope there are dr.'s at least looking into this for ccsvi. maybe you would want to send this info. to your dr. that treated you in israel. i think no stone should go unturned. i hope you let me know your thoughts on this. good or bad.
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Postby ariehs » Sun Jul 18, 2010 7:19 pm

Like I said, I brought this up with Dr. Gesundheit already, and he seemed uninterested. I don't really blame him. I'm going to email Dr. Slavin about it, though. I'm hoping to get to Tel-Aviv again in the not too far future, and when that happens, I'll schedule meetings with them, too.
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Postby MrSuccess » Sun Jul 18, 2010 8:56 pm

Dr. Gesundheit ...... :wink:






Bless you







Mr. Success
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