Maybe that's the mistake we're making, trying to convince others or ourselves, that anyone has a real stake. I mean, what can they really do? Like winter turns to spring, if people slowly stop buying that's the same as saying the sellers stop selling. They can't make what they can't sell. They're already stopping on their own.
So they shut down one production line and start up another. The person working on the line has to learn a different otherwise useless skill and go home and forget about that too...
What can anybody do to stop these millions from trying to get better? Nothing anybody can do. In the end it will not matter, if there is, or is not, enough scientific evidence for the most closed, or even open minds, all to be happily convinced. Sometimes our mental models just stop functioning, so we have to go find some that will take their place. Some times, something else to worry about.
It's just this painful transition we have to go through. Some won't make it. That's what we need to be concerned with. I think Liberation can dramatically prolong life.
At the same time, somebody asked me today, if it's safe from surgical mishaps, can it make you worse?
Well, if it makes you worse, as much as you can, you fix that also. Remember, some patients are so much older or have had worse damage getting worse for so long, that they just don't have the biological resources anymore to do the necessary nerve repairs. That's sad, and to be avoided whenever we can. Either (both to be hoped not) you run out of money, or things you can fix.
But life is a continuous struggle to make those repairs, and I think lately we've been seeing a lot more success than not. I've long had the motto: just stop me from getting worse and I'll take it from there. Seems to me that Liberation more often than not is slowing it down, or reversing it, or getting rid of it altogether. Often enough, any fool can see, to be very very well worth the finite but small risks. I would say that risk of worsening is so much larger as to make risk of accident negligible.
Even that, while finite, seems small. That is just my impression: I have not heard that the University studies or even the pay clinics who do stenting, are finding a big problem with worsening. Especially not accidental -- that was, so far, only very early on, and completely unnecessary now. Maybe they are just saving that for later, but I doubt it.
Much larger, IMHO, is the risk that a surgeon will think they do, but will not know what they are doing. From that perspective this push for treatment *is* happening too fast. The problem is not lack of evidence, or lack of documentation. Expertise is becoming less distant, and more common as we go.
But who cares about stats when they're sick? However unlikely a bad thing is, if it happens to you, it is once too many. That maybe is where Do No Harm comes in, and where patients have to trust doctors.
The good news, is seems a lot of disability and progression comes from May-Thurner. It is a known and treatable condition, insured if you have it. Drug companies are probably not even aware it is being studied.
If that's too much cheering, you must learn to share more.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience