double blind research buffalo

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby jimmylegs » Thu Jul 22, 2010 7:17 pm

contributions to courteous discussion are welcomed. please address the original question appropriately.
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Postby joge » Thu Jul 22, 2010 10:33 pm

Thanks guys, for your contributions. Cece, we'll keep your predictions in mind!

Still, we are all kind of guessing about some important details of the trail, especialy how it is made 'double blind'. And that is exactly my question from the start of this thread.

Isn't their any way to find out about the details? Directly from the scource? Buffalo? Has anyone got connections? Their website doesn't provide the detailed information we need..

The quest continues...
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TADAA

Postby joge » Fri Jul 23, 2010 6:36 am

YES !! THE SCOURCE !! Dr. Siddiqui hemself is explaining...

part 2 of the video
http://www.wkbw.com/programming/am-buff ... 22949.html

In this video, the docters, perfoming the trial, are explaining how it´s done. At the end, there is a caller, who asks my question.

The answer is that patients are conscious during the whole procedure!

Now, lets hope they can act as well as operate! On this video they are doing good !

part 1 of the video
http://www.wkbw.com/programming/am-buff ... 22814.html

And a press release
http://www.ubns.com/images/uploaded/ubn ... _Trial.pdf
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Postby nicknewf » Fri Jul 23, 2010 7:43 am

Great videos!
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Postby sbr487 » Fri Jul 23, 2010 7:57 am

so much sincere work happening. lets donate these folks as much as we can.
Had a question BTW, didn't this study apply for grant when 2.4 mil was disrtibuted?
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Postby Cece » Fri Jul 23, 2010 9:33 am

great work joge!!!
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby joge » Fri Jul 23, 2010 9:40 am

Cece wrote:great work joge!!!


Thanks to the Dutch website www.ccsvi.nl !!
(you can read it in any language, using the toolbar in the upper right)

Source of their informatie was probably: http://www.ubns.com/
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But still

Postby joge » Fri Jul 23, 2010 11:12 pm

If I were a patient, well informed about the trail, knowing there is a 50/50% chance I'm not really operated upon, how would I be in the operating 'theater'?

I'm almost shure I would know if it was for real or not. Docters are no actors... (as actors are no docters..)

I'm not blind/'blind' (because I'm concious and not a fool, I want to know if I am getting 'the real thing'), so the trail is not double-blind anymore, when I am alert.

So, the question remains... how do they do it..? How can they fool me, while I am awake?

Any ideas?
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Postby joge » Sat Jul 24, 2010 11:15 pm

No ideas? Come on..

Maybe it is the sedative they get during treatment? A drug that makes you less alert? Stops you from asking the 'wrong' questions? Stuff that effects your memory?

He did mention participants getting a sedative. He didn't mention witch one...
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Postby L » Sun Jul 25, 2010 3:14 am

Midazolam (an amnesiac and a sedative - called 'the twilight drug' by my dentist) ?
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Postby Billmeik » Sun Jul 25, 2010 8:00 am

angio feels like your ears popping under water. It's easy to tell if they inflate the balloon. Still this has been a long time coming so don't tell.
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Postby Billmeik » Sun Jul 25, 2010 8:10 am

even if you have blindfold and earplugs it feels like your ears just popped in your neck.
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Postby L » Sun Jul 25, 2010 8:12 am

Billmeik wrote:even if you have blindfold and earplugs it feels like your ears just popped in your neck.


With Midazolam you will not remember having had that sensation..
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Postby nicknewf » Wed Aug 11, 2010 2:07 pm

Anyone here know if the next 20 have been tested/treated? I'm very interested to learn how things are going.
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PREMISE - Study

Postby nicknewf » Wed Jan 26, 2011 6:42 pm

Anyone know of the results from the first 30 patients treated at Buffalo. I read somewhere it was in the peer review stage.
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