This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 25, 2013 1:30 pm

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 2 of 2
  [ 29 posts ]  Go to page Previous  1, 2
  Print view Previous topic | Next topic 
Author Message
adamt
 Post subject:
PostPosted: Thu Jul 22, 2010 4:23 am 
Offline
Family Elder
User avatar

Joined: Thu Mar 11, 2010 4:00 pm
Posts: 296
thanks for all the replies,

as ive already had a catheter venogram and doppler scan, i dont want to have to pay for 1-3 thousand EURO's on testing
Top
 Profile  
 
joge
 Post subject:
PostPosted: Thu Jul 22, 2010 4:40 am 
Offline
Family Elder
User avatar

Joined: Mon May 24, 2010 3:00 pm
Posts: 109
adamt,

You can send an email to Beelen and send copies of your CD's to Belgium for evaluatie. Beelen will inform you if he can be of help.
Top
 Profile  
 
adamt
 Post subject:
PostPosted: Thu Jul 22, 2010 4:52 am 
Offline
Family Elder
User avatar

Joined: Thu Mar 11, 2010 4:00 pm
Posts: 296
thanks joge,
i called his secretary and there is a long waiting list, at least the very end of the year.

so it looks like i will just go to Poland

its a shame because Belgium would have been much more convenient for me
Top
 Profile  
 
L
 Post subject: Re: adress Belgium
PostPosted: Thu Jul 22, 2010 6:25 am 
Offline
Family Elder
User avatar

Joined: Sat Oct 20, 2007 3:00 pm
Posts: 946
Location: The United Kingdom
joge wrote:
L wrote:
joge wrote:
Roel Beelen MD
Department of cardiovascular and thoracic surgery
OLV Hospital
Moorselbaan 164
9300 Aalst
België

Tel: (0032)(0)53/724599
Email: Roel(dot)Beelen(at)olvz-aalst.be


Thanks joge!


Some practical information:

I don't know how much time is needed between testing and treatment.
Beelen doesn't want you to fly within two weeks after treatment.


We have the eurostar connecting us!
Top
 Profile  
 
joge
 Post subject:
PostPosted: Thu Jul 22, 2010 6:26 am 
Offline
Family Elder
User avatar

Joined: Mon May 24, 2010 3:00 pm
Posts: 109
Il n'y as pas un probleme avec le train, je crois...
The train won't be a problem, I guess..

I think it's about the pressure diffences, during takeoff and landing, that may cause problems...
On the other hand, I heard about people getting treatment in Poland, coming and going by airplane, without any problem, so.. :?
Top
 Profile  
 
joge
 Post subject:
PostPosted: Thu Jul 22, 2010 6:31 am 
Offline
Family Elder
User avatar

Joined: Mon May 24, 2010 3:00 pm
Posts: 109
adamt wrote:
thanks joge,
i called his secretary and there is a long waiting list, at least the very end of the year.

so it looks like i will just go to Poland

its a shame because Belgium would have been much more convenient for me


Sorry, he's getting popular in The Netherlands too! I hope the waitinglist in Poland is shorter!

Good luck!
Top
 Profile  
 
adamt
 Post subject:
PostPosted: Thu Jul 22, 2010 7:19 am 
Offline
Family Elder
User avatar

Joined: Thu Mar 11, 2010 4:00 pm
Posts: 296
joge wrote:

Sorry, he's getting popular in The Netherlands too! I hope the waitinglist in Poland is shorter!

Good luck!


its ok Joge,

i have an appointment for Ameds - Poland in 4 weeks, but based on your results/experience i would much prefer to go to Belguim + its so much closer.

after a false negative in France, i need to triple check the dr i go to knows exactly what they are doing and does everything properly
Top
 Profile  
 
joge
 Post subject: Re: adress Belgium
PostPosted: Thu Jul 22, 2010 10:49 am 
Offline
Family Elder
User avatar

Joined: Mon May 24, 2010 3:00 pm
Posts: 109
L wrote:
joge wrote:
L wrote:
joge wrote:
Roel Beelen MD
Department of cardiovascular and thoracic surgery
OLV Hospital
Moorselbaan 164
9300 Aalst
België

Tel: (0032)(0)53/724599
Email: Roel(dot)Beelen(at)olvz-aalst.be


Thanks joge!


Some practical information:

I don't know how much time is needed between testing and treatment.
Beelen doesn't want you to fly within two weeks after treatment.


We have the eurostar connecting us!


L,

This guy from the UK, was treated in Aalst by Beelen:

http://www.msrc.co.uk/index.cfm/fuseact ... ageid/3008
Top
 Profile  
 
L
 Post subject: Re: adress Belgium
PostPosted: Thu Jul 22, 2010 10:53 am 
Offline
Family Elder
User avatar

Joined: Sat Oct 20, 2007 3:00 pm
Posts: 946
Location: The United Kingdom
joge wrote:
L wrote:
joge wrote:
L wrote:
joge wrote:
Roel Beelen MD
Department of cardiovascular and thoracic surgery
OLV Hospital
Moorselbaan 164
9300 Aalst
België

Tel: (0032)(0)53/724599
Email: Roel(dot)Beelen(at)olvz-aalst.be


Thanks joge!


Some practical information:

I don't know how much time is needed between testing and treatment.
Beelen doesn't want you to fly within two weeks after treatment.


We have the eurostar connecting us!


L,

This guy from the UK, was treated in Aalst by Beelen:

http://www.msrc.co.uk/index.cfm/fuseact ... ageid/3008


Ah yes, I'm familiar with David. Thanks for that. I knew he was treated in Belgium, I should have put two and two together.
Top
 Profile  
 
L
 Post subject:
PostPosted: Thu Jul 22, 2010 1:16 pm 
Offline
Family Elder
User avatar

Joined: Sat Oct 20, 2007 3:00 pm
Posts: 946
Location: The United Kingdom
Unfortunatly I received a reply from Dr Beelen - he is not taking on any more patients. Try again in eight monyjs he saud.
Top
 Profile  
 
joge
 Post subject:
PostPosted: Thu Jul 22, 2010 1:21 pm 
Offline
Family Elder
User avatar

Joined: Mon May 24, 2010 3:00 pm
Posts: 109
pffffffff
Top
 Profile  
 
joge
 Post subject:
PostPosted: Thu Aug 19, 2010 6:25 am 
Offline
Family Elder
User avatar

Joined: Mon May 24, 2010 3:00 pm
Posts: 109
joge wrote:
adamt wrote:
thanks joge,
i called his secretary and there is a long waiting list, at least the very end of the year.

so it looks like i will just go to Poland

its a shame because Belgium would have been much more convenient for me


Sorry, he's getting popular in The Netherlands too! I hope the waitinglist in Poland is shorter!

Good luck!


Dr Beelen in Aalst, Belgium, is taking new patients again!
Top
 Profile  
 
L
 Post subject:
PostPosted: Thu Aug 19, 2010 7:19 am 
Offline
Family Elder
User avatar

Joined: Sat Oct 20, 2007 3:00 pm
Posts: 946
Location: The United Kingdom
joge wrote:
joge wrote:
adamt wrote:
thanks joge,
i called his secretary and there is a long waiting list, at least the very end of the year.

so it looks like i will just go to Poland

its a shame because Belgium would have been much more convenient for me


Sorry, he's getting popular in The Netherlands too! I hope the waitinglist in Poland is shorter!

Good luck!


Dr Beelen in Aalst, Belgium, is taking new patients again!


That's great, where did you hear this?
Top
 Profile  
 
joge
 Post subject: belgium
PostPosted: Fri Aug 20, 2010 2:00 pm 
Offline
Family Elder
User avatar

Joined: Mon May 24, 2010 3:00 pm
Posts: 109
On the dutch ccsvi website: ccsvi.nl
He contacted the mediators to tell them.
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 2 of 2
  [ 29 posts ]  Go to page Previous  1, 2

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Has anyone been given a date with AMEDS CENTRUM?

adamt

4

1106

Tue Apr 20, 2010 6:32 am

annad View the latest post

There are no new unread posts for this topic. Dr. Vogl, Germany

[ Go to pageGo to page: 1, 2, 3 ]

frodo

40

7825

Fri Mar 12, 2010 5:03 pm

Zeureka View the latest post

There are no new unread posts for this topic. Dr Vogl Germany

Vee1012

4

1249

Mon Jun 21, 2010 2:47 am

Vee1012 View the latest post

There are no new unread posts for this topic. dr Vogl Frankfurt Germany

dania

1

1236

Mon May 24, 2010 2:38 pm

Frank View the latest post

There are no new unread posts for this topic. thomas j. vogl, germany

dino84

3

859

Tue Jul 19, 2011 1:17 am

Thekla View the latest post

 


Who is online

Users browsing this forum: ALA

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: