Which to pick: Dr Vogl in Germany or Ameds Centrum in Poland

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Which to pick: Dr Vogl in Germany or Ameds Centrum in Poland

Postby adamt » Tue Jul 20, 2010 12:41 pm

So after a false negative catheter venogram, i now need to get treated, but im not sure which to pick between:

Dr Vogl in Garmany - costs 5200 EURO
or
Ameds Centrum in Poland (dont know wich dr) costs 4980 EURO

- costs are for testing and balloon angio

Germany would be more convenient as the hospital is close to the airport, and i think Ameds is an hours journey to the clinic from the airport.

Which would you recommend/choose?

which one is more experienced in CCSVI?

any other opinions please?


p.s i have narrowed jugulars and mid-azygos (possibly) , may thurners, and my lumbar veins are poorly developed - according to Dr Sclafani.


thanks
User avatar
adamt
Family Elder
 
Posts: 304
Joined: Thu Mar 11, 2010 3:00 pm

Advertisement

Postby esta » Tue Jul 20, 2010 4:39 pm

hio adam
i've only been to euromed in Katowice,with Dr Simka, who has done the most in the world, with a long wait list. Newer is Amemds, which could be in Tychy, or Warsaw - i think Tychy has done it longer...i'd go to Poland, more likely trained by Simka, but thats just me....They all run around 7,000 EUR. but that includes hotel.
User avatar
esta
Family Elder
 
Posts: 385
Joined: Wed Nov 25, 2009 3:00 pm
Location: Summerland. BC Canada

Postby frodo » Tue Jul 20, 2010 10:38 pm

esta wrote:hio adam
i've only been to euromed in Katowice,with Dr Simka, who has done the most in the world, with a long wait list. Newer is Amemds, which could be in Tychy, or Warsaw - i think Tychy has done it longer...i'd go to Poland, more likely trained by Simka, but thats just me....They all run around 7,000 EUR. but that includes hotel.


Please somebody correct me if I am wrong, but I think that only Dr. Kostecky performs angioplasties in Tychy, and he has nothing to do with AMEDS.
User avatar
frodo
Family Elder
 
Posts: 620
Joined: Wed Dec 02, 2009 3:00 pm

Postby costumenastional » Tue Jul 20, 2010 10:49 pm

Just wanted to say how much i love the title of this post.

I am so happy that in a matter of months we are in position to choose where we will be treated. It was only Christmas time when people were straggling and fighting for this to happen.
This is a historical paradigm shift in medicine. We made it.

Now, we fight for more than the obvious and this is huge.
Congrats to everyone.
User avatar
costumenastional
Family Elder
 
Posts: 740
Joined: Sat Jan 31, 2009 3:00 pm
Location: Greece

more choice

Postby joge » Tue Jul 20, 2010 11:34 pm

Why not consider Belgium?

Treatment in the best vascular hospital of Belgium, even the Belgium king himself has been treated here (angioplasty, not for CCSVI). OLV hospital in Aalst. Close to Brussels airport.

Dr. Beelen MD is performing CCSVI treatment (ballooning and if neccessary stenting). Has done,I think, around one hunderd patients now. No known problems. Part of a research project.

Costs: treatment (without stent) about 1700 euro. You have to arrange your own hotel (possible for about 85 euro a day). CT & doppler: about 300 euro.


How about that?!
User avatar
joge
Family Elder
 
Posts: 109
Joined: Mon May 24, 2010 2:00 pm

Re: more choice

Postby L » Wed Jul 21, 2010 6:28 am

joge wrote:Why not consider Belgium?

Treatment in the best vascular hospital of Belgium, even the Belgium king himself has been treated here (angioplasty, not for CCSVI). OLV hospital in Aalst. Close to Brussels airport.

Dr. Beelen MD is performing CCSVI treatment (ballooning and if neccessary stenting). Has done,I think, around one hunderd patients now. No known problems. Part of a research project.

Costs: treatment (without stent) about 1700 euro. You have to arrange your own hotel (possible for about 85 euro a day). CT & doppler: about 300 euro.


How about that?!


I sent a PM to check if I have the right mail address for Dr Beelan. I like Belgium!
User avatar
L
Family Elder
 
Posts: 946
Joined: Sat Oct 20, 2007 2:00 pm
Location: The United Kingdom

adress Belgium

Postby joge » Wed Jul 21, 2010 7:47 am

Roel Beelen MD
Department of cardiovascular and thoracic surgery
OLV Hospital
Moorselbaan 164
9300 Aalst
België

Tel: (0032)(0)53/724599
Email: Roel(dot)Beelen(at)olvz-aalst.be
I'm ready, I'm ready !
User avatar
joge
Family Elder
 
Posts: 109
Joined: Mon May 24, 2010 2:00 pm

Re: adress Belgium

Postby L » Wed Jul 21, 2010 8:39 am

joge wrote:Roel Beelen MD
Department of cardiovascular and thoracic surgery
OLV Hospital
Moorselbaan 164
9300 Aalst
België

Tel: (0032)(0)53/724599
Email: Roel(dot)Beelen(at)olvz-aalst.be


Thanks joge!
User avatar
L
Family Elder
 
Posts: 946
Joined: Sat Oct 20, 2007 2:00 pm
Location: The United Kingdom

Postby joge » Wed Jul 21, 2010 10:49 am

Welcome, anytime :)
User avatar
joge
Family Elder
 
Posts: 109
Joined: Mon May 24, 2010 2:00 pm

Postby danegirl » Wed Jul 21, 2010 12:58 pm

As f<r as I have been inforned, Dr. Vogl only does one side. Charges the same again later if the other side is to be liberated too....

He says it's due to safety.
User avatar
danegirl
Family Member
 
Posts: 48
Joined: Tue Dec 01, 2009 3:00 pm
Location: Denmark

one at a time

Postby joge » Wed Jul 21, 2010 10:19 pm

Correct. Has something to do with pressure-changes and headaches etcetera.

Roel Beelen MD has a different opinion. He treated mij IJV's, left and right at the same time. And if I would have had other problems in the azygos or vertebral, he would have treated that in the same procedure.

I heard of several others with the same experience. I didn't have any headache, an other patient did. So... :?
User avatar
joge
Family Elder
 
Posts: 109
Joined: Mon May 24, 2010 2:00 pm

Postby Indiana » Wed Jul 21, 2010 11:30 pm

Thank you, Joge, for these brand new informations.

Do you feel any improvements since the procedure?


Indiana
User avatar
Indiana
Getting to Know You...
 
Posts: 10
Joined: Fri Feb 26, 2010 3:00 pm
Location: France

Postby joge » Thu Jul 22, 2010 1:55 am

:D :D :D

Having ppms, my expectations were low.
Beelen promised me less fatigue and better heat tolerance. I got much more...

Beter movement in my fingers (Left)
I could open my hand completely
Better balance
Better walking (no cane anymore)
Clear head, better smell, better hearing
I'm better company now
etc.

I'm still handicapt in al lot of ways, but my quality of life has improved enormous.
User avatar
joge
Family Elder
 
Posts: 109
Joined: Mon May 24, 2010 2:00 pm

Re: adress Belgium

Postby joge » Thu Jul 22, 2010 2:01 am

L wrote:
joge wrote:Roel Beelen MD
Department of cardiovascular and thoracic surgery
OLV Hospital
Moorselbaan 164
9300 Aalst
België

Tel: (0032)(0)53/724599
Email: Roel(dot)Beelen(at)olvz-aalst.be


Thanks joge!


Some practical information:

I don't know how much time is needed between testing and treatment.
Beelen doesn't want you to fly within two weeks after treatment.
User avatar
joge
Family Elder
 
Posts: 109
Joined: Mon May 24, 2010 2:00 pm

Postby Indiana » Thu Jul 22, 2010 2:54 am

joge wrote::D :D :D

Having ppms, my expectations were low.
Beelen promised me less fatigue and better heat tolerance. I got much more...

Beter movement in my fingers (Left)
I could open my hand completely
Better balance
Better walking (no cane anymore)
Clear head, better smell, better hearing
I'm better company now
etc.

I'm still handicapt in al lot of ways, but my quality of life has improved enormous.


That sounds great, Joge! Congratulations!

I was asking the adress for patients living in France.
We actually have a Dr. in Paris performing the venographie and balooning, but most of the time she considers people as "untreatable".
That's why some of us are looking for other solutions.
We can go to Belgium by train, that must be less dangerous than to fly, I suppose.
Did Dr. Beelen tell you anything about travelling by train after the treatment?

Best wishes Indiana



User avatar
Indiana
Getting to Know You...
 
Posts: 10
Joined: Fri Feb 26, 2010 3:00 pm
Location: France

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service