There was a post here yesterday about this group but I can't see it today.
On July 2nd a group of Canadians with MS had a meeting with a lawyer concerning the fact that angioplasty is not allowed for Canadians with MS. Angioplasty is an approved procedure in Canada and it is performed on the internal jugular veins. It is paid for by our Provincial Health Care. Except if you have been labeled with MS. Then it is called experimental and is not allowed. In fact clinics that test for CCSVI in Canada have been told to stop.
I have seen Canadians holding protests, marching, signing petitions and sending letters to their MP's and MPP's. This will not do anything. The advisory councils are not elected polititians. They do not care how many letters we write. They do not care if this is tested. This is all about money.
When I was at the meeting, I was sure we would raise $10,000 by the end of the week. Surprisingly this didn't happen. I don't know if we did not advertise enough. Or is this MS society is too fractured to respond But I have contributed. My MS group has contibuted. People at the meeting who have already had the angioplasty done have contributed. Do Canadians just not care? Or do they not understand?
Personally, I am on the list for Albany. I will go there, pay and have the angioplasty done. If I was cold hearted I would leave it at that. I did not need to contribute to this group trying to sue the Ontario government. But I do care. More than a person a day dies from MS in Canada. I care about those people and those that do not have enough money to go to the USA or elsewhere and pay. Why should this procedure be allowed for people with heart disease, cancer and kidney failure and not be allowed for people with MS.
The website is http://angioplastyforall.com