Angioplasty for all Canadians

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Angioplasty for all Canadians

Postby eveable » Wed Jul 21, 2010 3:41 pm

There was a post here yesterday about this group but I can't see it today.

On July 2nd a group of Canadians with MS had a meeting with a lawyer concerning the fact that angioplasty is not allowed for Canadians with MS. Angioplasty is an approved procedure in Canada and it is performed on the internal jugular veins. It is paid for by our Provincial Health Care. Except if you have been labeled with MS. Then it is called experimental and is not allowed. In fact clinics that test for CCSVI in Canada have been told to stop.

I have seen Canadians holding protests, marching, signing petitions and sending letters to their MP's and MPP's. This will not do anything. The advisory councils are not elected polititians. They do not care how many letters we write. They do not care if this is tested. This is all about money.

When I was at the meeting, I was sure we would raise $10,000 by the end of the week. Surprisingly this didn't happen. I don't know if we did not advertise enough. Or is this MS society is too fractured to respond But I have contributed. My MS group has contibuted. People at the meeting who have already had the angioplasty done have contributed. Do Canadians just not care? Or do they not understand?

Personally, I am on the list for Albany. I will go there, pay and have the angioplasty done. If I was cold hearted I would leave it at that. I did not need to contribute to this group trying to sue the Ontario government. But I do care. More than a person a day dies from MS in Canada. I care about those people and those that do not have enough money to go to the USA or elsewhere and pay. Why should this procedure be allowed for people with heart disease, cancer and kidney failure and not be allowed for people with MS.

The website is http://angioplastyforall.com
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Sticky

Postby eveable » Wed Jul 21, 2010 3:52 pm

Need a sticky on this please.
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Postby IRWIN » Wed Jul 28, 2010 5:07 am

i WOULD BE VERY INTERESTED TO KNOW ALL INFO RELATING TO SETTING UP AN APPOINTMENT IN THE U.S ALBANY AS i WOULD LIKE TO ARRANGE SAME FOR MY WIFE WITH M.S.
ANY HELP WOULD BE GREATLY APPRECIATED
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Postby Blaze » Wed Jul 28, 2010 6:16 am

Eveable: My cheque is in the mail (Honest!) It was sent on Saturday, so it should arrive soon. I hope more are on the way.

Unfortunately, I didn't get a great response from my friends when I suggested they donate to angioplasyforall instead of to MS Society. There seems to be a great mistrust of lawyers. Some friends instead say they will donate to Dr. Mark Haacke's work.

Let's not give up yet.

When are you scheduled for Albany?

Irwin: Check out the thread CCSVI Treatment Available in the U.S. There's lots of information there in response to your question.
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Postby garyak » Fri Jul 30, 2010 10:28 am

Was this original post deleted? I can't find it either.
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Postby Blaze » Fri Jul 30, 2010 11:08 am

Like Eveable and Garyak, I can't find the original thread either. Weird!

On a positive note, I received a notice earlier this week that donations were up to $9445. Well done, but please keep those donations coming, Canadians! Based on government response to date (and MS Society writing to all Ontario MPPs to NOT fund CCSVI treatment!), we're likely in for a long battle.

Information, including how to donate is at http://angioplastyforall.com
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Testing

Postby jjmagpin » Fri Jul 30, 2010 11:08 am

Eveable,

If you don't mind me asking did you get your MRI/MRV and dopplers done and send them to Albany or did you do all of this at the Albany clinic?
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CCSVI testing

Postby eveable » Wed Aug 04, 2010 4:30 pm

Sorry JJ, I have not been on here in a bit. I had the doppler done at Barrie Vascular Imaging. I don't think Albany needs anything but I have a piece of paper showing which 3 tests I failed.

Blaze, I don't have a date yet. I received an email on July 2nd that they will send me a date but the do not book more than 4 months out. So that should put me around end of Nov or Dec.
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Postby 1eye » Wed Aug 04, 2010 4:47 pm

Dr. Mehta is doing Liberations now. Probably has a long list too though.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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