dont bet on mss

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

dont bet on mss

Postby sbr487 » Thu Jul 22, 2010 8:33 am

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Postby concerned » Thu Jul 22, 2010 9:13 am

maybe you should offer a cash award to any neuro or big pharma or MS society person to come forth and post documents on wikileaks that could prove that there is a concerted, conspiratorial effort to block CCSVI.
If some of these people will willingly hurt people for free lunches it shouldn't be that hard.
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Postby welshman » Thu Jul 22, 2010 9:20 am

Ain't technology wonderful !!!! Thanks for the link from India !!!!!
I've copied this to my Provincial MLA (who sides with the College of Physicians & Surgeons who have a very similar attitude to the issue as the MS Society) and to my MP who is a big supporter of the MS Society (no doubt to help his political career !!!).
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Postby sbr487 » Thu Jul 22, 2010 9:55 am

concerned wrote:maybe you should offer a cash award to any neuro or big pharma or MS society person to come forth and post documents on wikileaks that could prove that there is a concerted, conspiratorial effort to block CCSVI.
If some of these people will willingly hurt people for free lunches it shouldn't be that hard.


it always take concerted effort to create something but you just have to look the other way in order to destroy. This is especially true when it comes to people with power (=money) ... Schelling story
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Postby 1eye » Thu Jul 22, 2010 1:30 pm

I would believe you, but not be surprised, if some folks did it without any reward. Smugness is its own reward.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby blossom » Thu Jul 22, 2010 3:51 pm

i'm not even gonna get excited or let my mad buttons get pushed. but, by the mss doing so little to even acknowledge ccsvi until their arms got twisted, their lack of at least getting testing started, their comment they had when dr. sclafani tried for irb approval, when they wouldn't let the guy in a wheelchair carrying a sign promoting ccsvi participate in their ms walk amongst other little questionable actions by a society that got as powerful only because of us getting sick and staying sick and they have no problem it seems advertising drugs that have now have been shown that they really aren't working that great WELL-just because you can't see a bullet with the naked eye before it strikes you-YOU KNOW SOMEBODY HAD TO LOAD THE GUN AND PULL THE TRIGGER. if the ms society wants us to believe they are our friend in this THEN THEY BEST BE PROVING THEY ARE NOT ONE OF OUR ENEMIES - THEY ARE NOT INNOCENT UNTIL PROVEN GUILTY IN THIS CASE!!
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