need help from CCSVIers

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

need help from CCSVIers

Postby zen2010 » Fri Jul 23, 2010 2:18 am

Hi

Maybe, this is a useless thread but I am puzzled with one thought and I would like to see whether I am thinking in the right direction or not:

I have a stenosis from my right internal jugular. When I had optic neuritis, the pain was located in the right side of my head.
-> I am wondering if there is a link here (CCSVI from one side = optic neuritis from the same side?)

I learnt somewhere that the left side of the brain is controlling the right side of the body & inversely.
My left side (leg + arm) is affected by my MS
->I am also wondering if there is a link here (CCSVI from one side = optic neuritis from the same side = body impacted from the opposite side?)

So, my case makes sense to me: I have CCSVI from my right jugular, optic neuritis appears at the right side, and my body is impacted from the left side

Do you (CCSVI people) meet the same issue?
Thks for your feedbacks
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Postby sbr487 » Fri Jul 23, 2010 2:28 am

This is a very good question, Zen. I think you should post this in Dr. S's thread.
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Postby costumenastional » Fri Jul 23, 2010 3:18 am

Stenosis was far more serious in my left jug (ballooned high and low) than my right. Optic neuritis hit me in my left eye.

I think that optic neuritis may be related with the corresponding jugular vein in some cases.Same goes for brain lesions. After all, ON is nerve damage in the brain, like MS lesions are. During my hospitalization, i met a patient with totally blocked right jugular. All 25 lesions of his were at the same side of his brain. In that sense, symptoms may exist in the opposite side of the body below the neck when there are no spinal lesions that are actually responsible.
All hypothetical of course..
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Postby Algis » Fri Jul 23, 2010 3:32 am

Optical nerves are crossed at the optic chiasm ( http://en.wikipedia.org/wiki/Optic_chiasm )

Same side of the brain process visual signals.
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Postby costumenastional » Fri Jul 23, 2010 4:05 am

This has to do with the visual signal which is processed by the opposite side of the brain. I don't think it has anything to do with the drainage of the optic nerve. From what i know of, jugular veins do not cross fade so even though i am not certain, if the inflammation takes place before the "X" (which is the longest part by the way) the corresponding jugular vein should be responsible for the ON.

Where the nerve is damaged in each case is really the question to ask. And the fact that MRI's are usually unable to see swelling and inflammation in most cases of ON episodes makes it difficult to answer.
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Postby THEGREEKFROMTHED » Fri Jul 23, 2010 7:06 am

THE DISEASE SUCKS. BOTTOM LINE.
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Postby Algis » Fri Jul 23, 2010 7:08 am

Indeed :D :D :D
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Postby costumenastional » Sun Jul 25, 2010 10:57 pm

This incredible shit simply cannot be described with words.
A never ending nightmare which only gets worse would be only an attempt...
Anyone else? c'mon dont be shy..
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Postby TMrox » Mon Jul 26, 2010 3:46 am

According to Simka's testimony in Canada:

1) CCSVI is highly correlated with MS. Only 3% of MS who have been tested were negative for CCSVI (using doppler ultrasound, mrv and standrard venography)

2) Localisation and severity of venous lesions significantly affect the clinic course of MS.

3) Injury to optic nerves were found more often in cases with unilateral lesions in the internal jugular veins. Whilst, bilateral stenoses in internal jugular veins were less frequent in this pathology.

4) More disabled patients were found to suffer from bilateral and or severe occlusions in the internal jugular veins.

5) The patients with stenosed azygous vein presented with the most aggressive clinical course of the disease.

6) A substantial percentage of MS patients improved their symptoms after the liberation treatment. This finding favours the idea that surgical treatment for CCSVI should be an important part of the management of MS.

Rox
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Postby CureIous » Mon Jul 26, 2010 6:22 pm

All I can say is my ON affected my right eye and I had stenosis and 3 stents placed on my left side, that little stringbean of a jugular that it was, the right side was significantly less in stenosis/collaterals etc and was substantially larger in volumetric movement of blood than the left.

So if I had to guess, I'd say the significant stenosis/lack of flow on the left side coincided with the ON on my right eye. The other physical type symptoms I had cannot be characterized as left/right.

Mark
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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