MS patients going in droves for unproven therapy

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

MS patients going in droves for unproven therapy

Postby sbr487 » Fri Jul 23, 2010 7:01 am

http://www.thestar.com/article/829735-- ... en-therapy

“That is one of the sad byproducts of this,” acknowledges Dr. Aaron Miller, head of the MS clinic at New York’s Mount Sinai Hospital and chief scientific adviser to the U.S. National MS Society.


Now it should be very clear where the negative stance of MSS is coming from ... I dont think this guy is in a hurry to let go MS from his list ...
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Postby BadCopy » Fri Jul 23, 2010 9:16 pm

I realize things can be taken out of context when speaking with a journalist so I will give Marc the benefit of the doubt.

Dr Miller and the rest of the medical community need to realize that we understand they want dbl blind this and that. What they need to understand is that we are going to move on with or without them. I don't think there should be hard feelings between the Neuros and MSers, just an understanding.

I am not waiting for studies, but I do welcome them. But if you plan on having a group of patients to study I suggest you hurry.
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Postby VeeBee » Sat Jul 24, 2010 8:59 am

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Postby sbr487 » Sat Jul 24, 2010 9:37 am

I was specifically commenting on Dr. Miller. Let me not go into specifics (and I cant) but this guy is leaving no stone unturned to make sure that CCSVI does not succeed ...

Of course, I am myself a big fan of Marc and even if he is opposed to CCSVI, his opinion would still be very balanced and objective. I wish the neuros learnt something from their patients ...
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Postby Lyon » Sat Jul 24, 2010 9:41 am

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Last edited by Lyon on Sun Nov 20, 2011 6:45 pm, edited 1 time in total.
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Postby sbr487 » Sat Jul 24, 2010 9:45 am

Lyon wrote:
sbr487 wrote:Of course, I am myself a big fan of Marc and even if he is opposed to CCSVI, his opinion would still be very balanced and objective. I wish the neuros learnt something from their patients ...
I'm not sure if you instead meant to say "even if he were opposed to ccsvi" but it would doubtlessly be inaccurate if you really are of the opinion that Marc is opposed to CCSVI.
Bob


You once gave me a "D" for my (poor) English. So that should explain the reason for confusion. But all is well as long as expression is completed (with proper correction at the receiving end)
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