BEST WISHES, DR. SCLAFANI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

BEST WISHES, DR. SCLAFANI

Postby HappyPoet » Sun Jul 25, 2010 7:06 am

.
Your symposium will be wonderful, Superstar.

Best wishes,
~Pamela
.
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Postby Cece » Sun Jul 25, 2010 9:00 am

It's tomorrow, isn't it?

You have my best wishes as well. Thank you for bringing your knowledge and experience and open-mindedness and ability to work with other doctors.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby welshman » Sun Jul 25, 2010 10:21 am

Yes, here's hoping that this Symposium will create a far greater understanding of the CCSVI problems and how to standardize some of the treatment options.

Maybe someone also suggest a "try & track" type of trial to get the treatment going but also providing clinical type results and follow-up ???
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Postby Onthelake » Sun Jul 25, 2010 4:37 pm

A million thanks Dr. Sclafani to you and all the others who take the time to attend, to work on our behalf and to OPEN their minds to new ideas. Wish I could be there, hope there will be a press conference and a video perhaps posted..if possible. We are all behind you. Best of luck.
Onthelake

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ccsvi

Postby blossom » Sun Jul 25, 2010 5:02 pm

dr. sclafani, thank you so much for everything you have done for us in the past the present and the future. the best of everything to you not only with the meeting but the best to you in life. you are one of those people that defines what it means to be a true and dedicated individual and doctor. thank you from my veins that feed my heart. blossom
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Postby MS_HOPE » Sun Jul 25, 2010 6:10 pm

What an exciting day it will be!! Thanks SO much for putting together and hosting this enormously important symposium, Dr. Sclafani, in the great City of New York! Very best wishes for opening minds and hearts to the truth of CCSVI in MS!
CCSVI:  Making Sense of MS
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Postby hopeful2 » Sun Jul 25, 2010 6:39 pm

Dr. Sclafani, Thanks for organizing this conference. I hope it goes well---you're the ultimate Rock Star in my humble opinion!

Patrice
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Postby ozarkcanoer » Sun Jul 25, 2010 6:50 pm

Dr Sclafani, I wish we could all be at your symposium. It would be so wonderful to hear all the IRs and other experts share their experiences with CCSVI treatment. You and all the other doctors will be in our thoughts tomorrow as you talk about this procedure that has the potential of changing so many of our lives from hopeless to hopeful again. I hope we get to see and/or hear and/or read some of the highlights of the meeting. On this board you have learned how much it means to us when we can be involved in our own treatment. It gives us a sense of power over a disease that can be very cruel.

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Re: Best wishes, Dr. Sclafani

Postby NHE » Sun Jul 25, 2010 11:55 pm

Onthelake wrote:A million thanks Dr. Sclafani to you and all the others who take the time to attend, to work on our behalf and to OPEN their minds to new ideas.


...and if that doesn't work, "make them an offer they can't refuse." Image


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Postby HappyPoet » Mon Jul 26, 2010 5:03 am

Thinking of you, DrS
Have fun!
:)
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Postby hannakat » Mon Jul 26, 2010 5:38 am

Dr. S. ~ You're in my thoughts! It's gonna be a great day for all who are there. Thank you!
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Postby NormB » Mon Jul 26, 2010 6:33 am

Big thank you and best wishes Dr S.
May your symposium be an additional drop of water to the almost full glass and hopefully be part of the cascade when it reaches full.

Take care

Norm
'92 diag RR - '05 SP
On LDN since Sept. 2012 with better quality of life.
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Postby Cece » Mon Jul 26, 2010 9:10 am

Here is a link to some live updates on how the symposium is going:
http://www.facebook.com/pages/CCSVI-MS- ... all&ref=mf
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby Frank » Tue Jul 27, 2010 1:53 pm

A report by Wheelchair Kamikaze covering the symposium can be found here:
http://www.wheelchairkamikaze.com/2010/ ... osium.html

--Frank
Treatment: Gilenya since 01/2011, CCSVI both IJV ballooned 09/2010, Tysabri stopped after 24 Infusions and positive JCV antibody test, after LDN, ABX Wheldon Regime for 1 year.
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Re: Best wishes Dr. Sclafani

Postby NHE » Tue Jul 27, 2010 9:20 pm

Girlgeek's videos of the conference can be found at the following link. :peace:

http://s112.photobucket.com/albums/n167 ... Symposium/


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