BooBear wrote:Everyone, at the end of the day we have to do what the neuros do- rely on our community.
Not all neuros are bad- or even apathetic. They are simply stuck in a point of reference that they can't seem to shake loose. Be it due to money, pride, or just plain ignorance, I believe that only an overwhelming amount of evidence will start to turn the tide there.
But here is the good news- we are not a group of spineless, weak, sad people that follow orders like well-trained dogs. To live with this disease takes an incredible amount of strength; to operate every day with the cloud of a relapse without warning over your head takes resilience. We ARE the ones with pride. We have TOO MUCH PRIDE to just sign over our lives to this disease without a fight.
We will all support each other- so long as we stay the strong, resilient group that we always have been.
MrSuccess wrote:please take note : the first guest speaker at Dr. Scalifani's gathering is
Dr. Salvi who is a neurologist and is Dr. Zamboni's main partner in the Liberation discovery.
The Buffalo study is being conducted by Dr. Zivadinov and Dr. Weinstock-Guttman .... BOTH .... neurologists.
May I suggest that each person - neurologist - be evaluated on a individual basis . ........ Not as a group .....
I am all too familiar with the experiences that pwMS report here at TIMS that they have with their neurologists. Some .....very bad.
Better to focus and promote the more open minded neurologists.
MrSuccess wrote:aloha selkie - thank you for taking the time to give us the run down on the conditions you are facing in Hawaii. It sure sounds discouraging .
I suppose many living state side .... in small towns .... understand your plight. But I am certain there are many incredible doctors practicing in smaller or remote communities . Doctors use the Internet big time.
So the playing field should be level .
Any chance you can see Dr. Dake in Stanford ? [ yes .. I know his specialty ]
You might have to bypass the Neuro community and get yourself evaluated for CCSVI .........
As I said on my post ... not all Neuro's are resisting the new idea .....
You know what I find funny ? When the Neurology field makes statements about how dangerous it is to enter veins and open stenosis' ...... and they would know this how ? ......... Almost every IR and such ..... stays clear of offering any opinions of the Neurology world ....... but the Neuro's seem to have no problem offering their two cents ..... in a field they have no business in or understand or can actually function in .
There is so much positive and good news regarding CCSVI ...... it just has to expand to Hawaii ......
L wrote:Perhaps they get so used to being unnecessary that they can't process the information! Alzheimer's -no cure. MS - no cure, spinal cord injury - no cure. The list goes on and on and on. It must be quite a depressing job and it surprises me that they are so unenthusiastic over the first thing that offers hope to anyone, ever, in the field of neurology.
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