Gang, here is what I did to cope with my anger. I became one very determined b*tch.
1. I tell anyone that will listen to me about CCSVI. I direct them to all the sites and encourage them to review the information and come to their own conclusions.
2. I purchased two large car magnets that encourage people to seek out information on CCSVI and the Liberation Treatment for MS. This weekend I had a great conversation with one woman (see my post on "Getting the word out!")- I hope that others read the magnets, jot down the info and do their own research as well.
3. I took matters into my own hands. My neuro told me two people died from the Liberation treatment (false). One IR I visited knew nothing about it- I left him several research papers. I got on the waiting list for Albany. Don't let anyone stand in your way.
4. I help anyone that I can with information, information, information.
Their neuros won't help them- so I will.
5. I informed my GP (who was FAR more open) and he decided to learn more. He can refer patients- that's where those conversations are worthwhile.
6. I ceased donations to the MS Society. When they help us, I will help them.
7. I plan on donating to the CCSVI Alliance.
In my experience, the best way to manage anger is with action. Take control and let the frustration serve as fuel to push you even harder. You will be amazed how much you accomplish!!!
Three veins angioplastied. One renewed life.