Was just liberated - have a few postop questions

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Was just liberated - have a few postop questions

Postby jilthepil » Mon Jul 26, 2010 1:55 am

I was liberated 7/21 in NY. Angio of the left IJV + two adjoining stents placed in the azygous. (Which the doctor told me that my azygous looked like a twist-a-balloon from a birthday party).

Anyway - surgery went well on Wednesday a.m. I am having significant postop discomfort in my right upper back/chest area. It has changed since the first few days postop. It is now radiating down into my right breast bone and right rib cage area. Additionally, I have shortness of breath with exertion. I don't feel short of breath all the time - but occasionally if I do too much/too fast.

Can anyone else share with me their pain and discomfort story, the type of symptoms and how long it lasted postop if you had azygous stenting?

Thank you!!
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Postby CureOrBust » Mon Jul 26, 2010 2:55 am

have you discussed this with your Dr?
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Postby jilthepil » Mon Jul 26, 2010 3:32 am

I did email him the evening following my surgery and told him about my back/chest discomfort. He said that was normal and should go away within a few days. A different CCSVI friend told me it would take a few weeks. (She had azygous stenting).

My pain level has decreased since Thursday postop, but it has also "shifted" positions a bit and is a bit different now. It seems to be improving compared to Thursday, but I still get moments of discomfort and have trouble getting comfortable with my position when sleeping, etc.

I am wondering if I am just doing too much. I'm never a good postop patient. I want to do normal things right away. :) It also hurts to take a deep breath or to laugh or sneeze. ??

Any insight from a veteran would be great.
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Postby CCSVIhusband » Mon Jul 26, 2010 4:09 am

My wife only had ballooning on the azygous and said hers hurt for a week or so after the procedure. She said she can still "feel" where the balloons were today (1 month later).

Just a heads up ...
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Postby pklittle » Mon Jul 26, 2010 7:51 am

If I were you, I would get this checked out to make sure there's no thrombosis or stent migration.
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Postby jilthepil » Mon Jul 26, 2010 8:59 am

How would they check this out? I had this done out of state. I was told by my doctor who did the Liberation that I only needed follow up care with Doppler once a year for my IJV.

Additionally - I was out of it when we spoke postop and I forgot what he said about following up my azygous. I would think that could only be done with venogram again. Right?

I feel like some of my discomfort is probably NORMAL postop pain - but I am a little concerned about the shortnes of breath.
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Postby Rosegirl » Mon Jul 26, 2010 4:20 pm

jilthepil,

Congrats on joining the "liberati"! Can you tell us what your symptoms were before the procedure? And have you noticed any changes other than the pain you described?
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Postby jilthepil » Mon Jul 26, 2010 4:46 pm

My symptoms preprocedure were ringing in ears. That is gone. Brain fog. Now gone. Headaches - haven't had one yet. Severe fatigue. Haven't dealt with that yet, just normal fatigue.

My gait is the same and my numbness and tingling seem to be about the same. I can live with that. The ringing in my ears is a huge improvement for me as is the fatigue disappearing. If that is as good as it gets, I will be a happy girl.

My pain seems weirdly located to me. It is now in my right rib area and is sharp at times. Perhaps this is normal. Also - my breathing could be best described as me taking "big breaths" periodically. I get short of breath when I climb the stairs now and it takes me a while to catch my breath. However, I notice that I need to occasionally take very deep breaths to feel relief.

Very weird.
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Postby Onthelake » Mon Jul 26, 2010 5:12 pm

I think you should call the Dr that looked after you and give a full report, I would rather you be safe than sorry. I am hopefully heading to Albany in a few months...best of luck. :)
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I am a great believer in luck, and I find the harder I work, the more I have of it.  Stephen L.
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