Getting the word out!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Getting the word out!

Postby BooBear » Mon Jul 26, 2010 4:51 am

I had ordered a couple of CCSVI car magnets (you know the kind- the really big ones). I figured that as much as I traveled it could only help get the word out.

Well, this weekend I pulled into a parking lot while running errands. The woman who parked next to me wanted to talk about CCSVI as she had never heard of it (shocking!)- her father and grandmother had both passed from MS. She was astounded after our conversation and jotted down both this forum's URL, MSanswers.info and CCSVIAlliance.org at my direction. I also told her to view the before-after CCSVI videos on YouTube.

She interfaces with a lot of patients and friends she has met over the years that are battling this disease- she was excited to have something to share with them!

The more we can get the word out, the faster we can gain acceptance. Woohoo!
Three veins angioplastied.  One renewed life.  
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Postby BadCopy » Mon Jul 26, 2010 6:02 am

Thatss Great !

I think I am going to do the same. And get the ccsvi business cards.
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Postby Donnchadh » Mon Jul 26, 2010 6:35 am

You go girl!

(waves hand and snaps fingers)

People, the neuro's are NOT going to advance CCSVI. It's not in their interests. Period.

I have tried to tell other MSer's about CCSVI and I am shocked how resistant they are to anything not approved by their neuro's. I am thinking of one who is very well off financially and is spending a fortune on Pharma drugs....and with absolutely no success. I tried to tell her about CCSVI and Dr. Zamboni and she said she was busy and would get back to me.

She hasn't brothered.

Considering how few IR's there are right now who are doing the liberation procedure, perhaps this arrogant attitude is for the best.

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
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