This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 18, 2013 6:23 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 3 posts ] 
Author Message
 Post subject: Getting the word out!
PostPosted: Mon Jul 26, 2010 4:51 am 
Offline
Family Elder
User avatar

Joined: Mon Mar 01, 2010 4:00 pm
Posts: 336
Location: Chicagoland
I had ordered a couple of CCSVI car magnets (you know the kind- the really big ones). I figured that as much as I traveled it could only help get the word out.

Well, this weekend I pulled into a parking lot while running errands. The woman who parked next to me wanted to talk about CCSVI as she had never heard of it (shocking!)- her father and grandmother had both passed from MS. She was astounded after our conversation and jotted down both this forum's URL, MSanswers.info and CCSVIAlliance.org at my direction. I also told her to view the before-after CCSVI videos on YouTube.

She interfaces with a lot of patients and friends she has met over the years that are battling this disease- she was excited to have something to share with them!

The more we can get the word out, the faster we can gain acceptance. Woohoo!

_________________
Three veins angioplastied.  One renewed life.  


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jul 26, 2010 6:02 am 
Offline
Family Elder
User avatar

Joined: Sun May 23, 2010 3:00 pm
Posts: 141
Location: 10,000 Lakes
Thatss Great !

I think I am going to do the same. And get the ccsvi business cards.


Top
 Profile  
 
 Post subject:
PostPosted: Mon Jul 26, 2010 6:35 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 23, 2010 4:00 pm
Posts: 465
You go girl!

(waves hand and snaps fingers)

People, the neuro's are NOT going to advance CCSVI. It's not in their interests. Period.

I have tried to tell other MSer's about CCSVI and I am shocked how resistant they are to anything not approved by their neuro's. I am thinking of one who is very well off financially and is spending a fortune on Pharma drugs....and with absolutely no success. I tried to tell her about CCSVI and Dr. Zamboni and she said she was busy and would get back to me.

She hasn't brothered.

Considering how few IR's there are right now who are doing the liberation procedure, perhaps this arrogant attitude is for the best.

Donnchadh

_________________
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 3 posts ] 

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. spreading the word

zap

8

1326

Thu Jun 25, 2009 11:58 am

Loobie View the latest post

There are no new unread posts for this topic. The word is spreading...

ikulo

1

957

Sun Nov 22, 2009 7:58 am

mrhodes40 View the latest post

There are no new unread posts for this topic. spread the word!

onesickrace

1

904

Tue Jan 26, 2010 4:24 pm

shye View the latest post

There are no new unread posts for this topic. A new word to look for: Echocardiography

frodo

0

721

Fri Apr 09, 2010 11:41 am

frodo View the latest post

This topic is locked, you cannot edit posts or make further replies. just a word of caution

[ Go to pageGo to page: 1, 2 ]

scorpion

22

2487

Sat Oct 02, 2010 2:21 pm

jimmylegs View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: