For over five years, I've consistently had great trouble walking due to stiffness and balance problems, and thankfully, that's the extent of my symptoms. But on multiple occasions, just for a few minutes, I could walk perfectly. I could swing my arms, turn circles, everything was completely normal. I never knew why it happened or what made it stop.
For me, the obvious answer would be that it's a valve problem. Stenosis or something pressing on a vein just couldn't explain how symptoms could come and go so quickly.
I was liberated on July 7 when my azygous was ballooned 4-5 times. Since my only problem is walking and I had already had those wonderful short "remissions", I expected to dance out of the hospital, but it didn't happen.
So far, although my feet are no longer purple, any so-called improvements are minor and aren't repeated. It may be that my legs are a little stronger, but it's not enough to really matter.
I'm going to try and get a second opinion that looks more directly at valve and/or flap issues. I read a few months back that Dr. Simka was finding valve/flap problems in more than half of his patients, and I'm not sure that my doctor really looked for this kind of problem. It's sure on my list of questions when I have my follow up appt next month.
I'm surprisingly happy about my status. Maybe it's because I have proof that I had a vascular problem, not an autoimmune disease.