Excited, numb, scared, you name it -- liberation today!!!!!!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Excited, numb, scared, you name it -- liberation today!!!!!!

Postby bluesky63 » Wed Jul 28, 2010 5:00 am

In some ways I don't want to have any emotions or expectations. In other ways I have every hope and dream in the world after working so hard to accept my life and learn to be positive as a single disabled mom, knowing the present was bad and trying not to think about the future but just live for beautiful moments.

No MS treatments have worked for me except IVIg until I had the anaphylactic reaction-- well, humor and denial. :-)

So with so much disability I don't know what to realistically expect, but I will be an honest reporter if I ever get on the computer. :-)

anyone who knows me knows Neruda and cummings are about my favorite standby poets. I am going to post this, with a heartfelt request for your good wishes as I do this, since in my offline life I am very isolated and don't have a community of humans to support me -- I would be happy if I thought I had at least virtual support. :-)

and then I would like to post a cummings poem I love that seems perfect for a Liberation day --

Wish me luck! I hope later I am free to feel, to allow myself to feel, and that the feelings will be amazing. I am so grateful to everyone here who has brought me to this opportunity. :-)
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Postby bluesky63 » Wed Jul 28, 2010 5:11 am

i thank You God for most this amazing day

e. e. cummings


i thank You God for most this amazing
day:for the leaping greenly spirits of trees
and a blue true dream of sky; and for everything
which is natural which is infinite which is yes

(i who have died am alive again today,
and this is the sun's birthday; this is the birth
day of life and of love and wings: and of the gay
great happening illimitably earth)

how should tasting touching hearing seeing
breathing any--lifted from the no
of all nothing--human merely being
doubt unimaginable You?

(now the ears of my ears awake and
now the eyes of my eyes are opened)
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Postby Algis » Wed Jul 28, 2010 5:21 am

All of my best is with you :) Be the Sky Blue again and stronger !!!
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Postby costumenastional » Wed Jul 28, 2010 5:37 am

Good luck friend!!! I ll be waiting to hear best news possible from you. It can only get better.
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Postby sumsum » Wed Jul 28, 2010 5:53 am

Wishing you the best of luck Bluesky63!
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Postby TFau » Wed Jul 28, 2010 5:55 am

What a beautiful poem!

Good luck to you - I hope you get some relief!!! I'll be eagerly awaiting reports, however it goes!
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Postby msgator » Wed Jul 28, 2010 6:15 am

good luck, best wishes, good thoughts and lots of hope from one mother with MS to another. May your healing journey begin today....looking forward to hear the reports.

:)

Ann
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
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Postby Trine » Wed Jul 28, 2010 6:30 am

Good luck and best wishes.
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Postby CCSVIhusband » Wed Jul 28, 2010 7:08 am

Good luck BlueSky ...

You're in good hands with THAT doctor THERE :-) ...

Please remember to keep his name off these pages (or any other pages) - obviously I know who HE is ... since we went to him as well.

All the best, I'm not sure I understand how different levels of disability are affected by liberation, it seems to help MOST ... but know you're going to a great doctor right now! (and isn't it a beautiful place there???) ... I couldn't believe it!
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Postby PCakes » Wed Jul 28, 2010 7:10 am

Luck and prayers :)
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Postby Rokkit » Wed Jul 28, 2010 7:16 am

Best of luck to you BlueSky!
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Postby pegmegrund » Wed Jul 28, 2010 7:18 am

Bluesky,

I've been following your posts since I joined TIMS in November of last year. I'm so happy for you!

Sending you good, positive vibes today! You have lots of support here at TIMS, as you can already tell...

Pam
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Postby HappyPoet » Wed Jul 28, 2010 8:01 am

Bluesky,

You'll do great!
I'm so happy for you.
If I type anymore, I'll start to cry.
So I'll end all of my wishes here with a :D

Your virtual friend,
~HappyPoet
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Postby cheerleader » Wed Jul 28, 2010 8:15 am

Thinking of you today, sky. ee cummings is very special to us, too. Jeff wrote a song cycle for me based on his poems...he does have a way with words. And so do you. It's a good day.
Please keep us posted---
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby blossom » Wed Jul 28, 2010 8:15 am

my thoughts and prayers are with you on your journey of getting better.
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