Rieja wrote:Based on severity and time, it reminds me of people that have a stroke. There are so many different degrees and locations. I have heard this from one person: "Yeah I was a stroke victim but I am ok now".
One day I want to look back and say "Yeah I was an MS victim but I am ok now".
Tommy has been on Tysabri for over 2 1/2 years and we are scared to take even one more infusion, so we are really hoping for some results. He took Copaxone for about 10 years before that.
To Brian - your "get real people" comment was a little harsh. I was just expressing my honest feelings about what I thought the doctor meant. Forgive me for wanting this for my husband more than any thing in my life!!
Trish317 wrote:How does one determine if progression has been slowed or halted? I know that symptoms will tell alot, of course, but how is it possible to know if someone is no longer getting worse? Is it a matter of no more lesions developing? Do existing lesions heal?
Trish317 wrote:Aside from CCSVI, are there medical tests that a doctor performs on a person with MS....MRI's, spinal taps, etc. that determine progression?
I apologize for my dumb questions. My darling man and I had a conversation the other night and he mentioned something about one of his doctors telling him, when he was first diagnosed, that he should have periodic tests (I think it was MRI's) to determine the progression. He didn't see the point in having the test.
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