blossom wrote:frodo, in my quest to try to at least get tested for tos because i had read somewhere that if you have tos you are likely may have ctos. i could be wrong about that. anyway the dr. brought up that tos surgery is not a cake walk either
No. It is not a cake. Probably they will cut a piece of one of your neck muscles if your TOS is severe. On the other hand, it it is a soft TOS they will give you physiotherapy.
blossom wrote: some actually end up with more pain etc. and scar tissue can become a problem. when i read about dr. noda i found nothing about any downfalls to the procedure. do you know of any? the tos site has the good the bad and the evil so to speak.
No. I have no information. There is a Facebook patients lists. Here you have the list of the 20 (by now) MS-TOS patients operated by Poblete:http://www.facebook.com/notes/para-apoy ... 2144261409
blossom wrote:since tos is recognized there is more info. do you know if the dr. in spain has anything out there on cases that may have gotten even worse? i really believe in my case at least that there is something pressing on nerves and veins or at least too close for comfort. pain is not a real biggie in my case and i'd hate to have that added to the list. so far thank God eyes, speech are ok.
No. I have no information about Castillo Recarte. Nor good nor bad. Maybe you can try to contact him and ask directly. I will PM you his email.
blossom wrote:i have plenty of the other things big time. as with ccsvi, of which i am still a advocate, we are finding it is not a piece of cake in some cases. my treatment left me immediately with a numb leg and foot and that remains and numbness anywhere was never an issue. the very small improvements have left and i am worse. thankfully i did not get a stent and have to deal with that too. so now i have to get this figured out. my gut feeling is that i've always had the neck question and differences in the placement of my head that would cause changes. i don't come close to having the medical savy you guys do. but i'm wondering if when ballooning it could have put more pressure on a nerve causeing my numbness and if i am crammed for space in that area anyway how would a vein not restenose? so i do want to somehow pursue the ctos but at least have a better idea of the risks too. you and nunzio seem to be up on this the most. any thoughts or info? i always enjoy your posts.
If your disease has changed for worse after angioplasty that means that vascular system is involved. I hope soon we will know more about this disease.