They made this thread a sticky for those that did not improve after procdure...
In the mean time, does anyone here want to suggest what in the world I should be telling or asking my GP? His office just called my wife, my wife just called me and I had to tell her to wait until I find out on here who it is I need our GP to refer me to. Is it an interventional radiologist? I am not an avid study of all things MS or CCSVI like most on here. Im just starting to get my feet under me, so to speak, and shake some of this depression and try and help my self if I can.
I'm so sorry. I hope you can be seen by medical professionals in your area. LR gives great advice.
Here's a thread you started back in January regarding going to Poland. I know this doesn't help you, but I've really been trying to make sure patients have follow-up care and that they stay home for treatment...here's what I said back in January---
http://www.thisisms.com/ftopict-9939-.htmlI know I sound like a broken record (that reference gives away my antiquity), but we need to find local interventional radiologists and vascular surgeons in our own home towns. This is the only way. Bring the research to your local universities. Book conferences with IR doctors, e-mail as many IRs as you can. There will be more research coming out in the next month, which will help. wishing you the best, Chris, truly. I'm sorry.
to all reading this thread. Please , stay at home. Get treated by doctors that can follow you, monitor your INR/PT time, keep an eye on you.
Rokkit wrote:Hey Chris, I know you're doubting CCSVI right now and I don't blame you. One thing that occurred to me though, I have no idea what could have gone wrong, but the fact that you got so bad shortly after someone monkeyed with your veins supports the connection of CCSVI to MS in my mind. If they weren't related, messing with your veins a little here and there shouldn't have much affect on your MS I wouldn't think. So maybe you're on the right track, there's just some detail that's yet to be determined in your case.
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