val57gal wrote:Dr. Arata (who did my procedures) is part of this group. He's very enthusiastic and just came back from the symposium.
He's also very knowledgeable about May-Thurner, which may be wrapped into all this somehow (it is for me).
BTW, he's been using IVUS for years--it's standard IR stuff, not a Sclafani thing.
val57gal wrote:Because of my swollen ankles, we then did a pelvic MRV which found possible MT and justified a second venogram. Next week, he's going in from the left, rechecking the IJVs, approaching the azygous with what he learned at the symposium, and probably stenting the iliac for MT. I'll know more after Thursday.
Rokkit wrote:I like their focus on symptoms directly attributable to venous obstruction. That's a good approach. I feel like that's more or less the direction Dr. Dake was heading until the neurologists swooped in and saved us.
Currently the relationship between Multiple Sclerosis (MS) and CCSVI is still being defined and is debated among leading MS experts. However, many of the symptoms of central venous occlusion and stenosis seen in CCSVI are well understood and have been treated for many years. Central venous occlusion and stenosis may cause a variety of symptoms including swelling of the head, face, or neck, skin color changes within the head, face, or neck, swelling, heaviness, and throbbing of the arms, and occasionally light headedness.
It is not uncommon that these symptoms are disregarded by patients or go unrecognized by medical professionals. In fact, many patients who deny these symptoms on initial presentation will recognize them after being questioned about them or will report the symptoms improve after treatment. Although the short and long term outcomes of patients with Multiple Sclerosis who are treated for CCSVI is not clearly established, it has been clearly shown that symptoms related to venous stenosIs improve with central venous angioplasty and/or stenting.
While central venous therapies for CCSVI may improve MS symptoms, the Physicians at Pacific Interventionalists encourage patients to understand that these benefits have not been clearly defined. Some patients may experience relief of their MS symptoms. However, some patients may have only a transient relief or no relief of their MS symptoms.
Patients with CCSVI suffering from the symptoms described above may benefit from the well established use of angioplasty and/or stenting to treat their narrowed veins. Thus, at Pacific Interventionalists, we encourage patients with MS to seek evaluation of symptoms which may be attributable to venous blockage (CCSVI).
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