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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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VailKin
PostPosted: Sat Jul 31, 2010 9:34 am 
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Has anyone who has been "liberated" experienced relief from restless legs syndrome? I can't find any info on it in the tracking thread and/or CCSVI FB site.
Thanks!

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SickButHappy
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PostPosted: Sat Jul 31, 2010 11:34 am 
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This is my MAJOR problem; would love to know too :)
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Katie41
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PostPosted: Sat Jul 31, 2010 11:56 am 
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Yes, after angioplasty of both jugulars and azygos, total relief from my moderate to severe RLS. When the jugulars began to restenose, it started up a little, but when the jugulars were reballooned it went away again. It's only been two weeks since the reballooning, but so far, so good. :)
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SickButHappy
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PostPosted: Sat Jul 31, 2010 11:57 am 
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wow, thanks for sharing!!
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VailKin
PostPosted: Sat Jul 31, 2010 3:25 pm 
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Quote:
Yes, after angioplasty of both jugulars and azygos, total relief from my moderate to severe RLS. When the jugulars began to restenose, it started up a little, but when the jugulars were reballooned it went away again. It's only been two weeks since the reballooning, but so far, so good. Smile


Katie41,
Thank you for the response. Bc low iron levels are possibly implicated in RLS and many people w/ MS have RLS, I'm wondering about the connection of CCSVI and RLS. I would undergo the angioplasty just to relieve the gd RLS (which my current neuro and PT say aren't really RLS since they can feel the muscles jumping around under my skin)...
Thanks!

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NormB
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PostPosted: Sat Jul 31, 2010 3:48 pm 
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Perhaps it's not news to most but until I get the liberation I control my RLS with Baclofen 10mg to 40 mg with very good results so far plus as a bonus a profound sleep.

Take Care All

Norm

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Rose2
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PostPosted: Sat Jul 31, 2010 7:41 pm 
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Yes.
I was Liberated 10/2009, and I have never had another night of jerky legs, squiggly legs, or any leg thing that kept me awake for years.
threw away the Baclofen and pain meds.
Rose
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SickButHappy
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PostPosted: Sun Aug 01, 2010 3:45 am 
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For me, Baclofen doesn't work, but Mirapex is marvelous :)
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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