I have officially reentered the blogosphere! Check it out.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

I have officially reentered the blogosphere! Check it out.

Postby lucky125 » Sun Aug 01, 2010 9:38 am

Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com
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Postby Rokkit » Sun Aug 01, 2010 2:46 pm

Great job!
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Postby lucky125 » Sun Aug 01, 2010 3:20 pm

Thanks Rokkit.

For those of you who want a quick report: I have been REliberated!

It turns out that I had significantly restenosed from my first procedure 5 months ago.

I have begun to see improvements almost immediately. Most importantly, my balance and therefore my walking are MUCH BETTER. And it has only been 2 days!

We now believe that I began restenosing about 3 weeks after the first procedure. I was treated by a different doctor this time who has a lot of experience. If you recall, I was the first person treated at Georgetown. Although my doctor may be a fine surgeon, we now know that this procedure is like nothing these doctors have ever done before.

My current doctor was more aggressive that the first, so I am hopeful that this treatment will last much longer. I chose not to stent, so we'll have to wait and see!

Now, if you want more info please check out my blog. I also have detailed notes from the Symposium, too.

Nicole
Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com
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Postby AlmostClever » Sun Aug 01, 2010 3:43 pm

Thanks Lucky125!

You've pointed out a very good reason to hold off on stenting until vein stenting is perfected! Much sasfer to redo the procedure than deal with a horrible stent issue!

The improved vein stent is just around the corner from what I've read on this forum...

Those of us who are in better condition and feel they have time to wait may consider to forego stenting on the first lap...

If you have to travel the first time, chances are (WHEN CCSVI is proven) it will be much easier to go local the secoind time!

Much continued healing to you!

A/C
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby Drury » Sun Aug 01, 2010 4:38 pm

Thank you Lucky125!!

Great to hear that you are feeling so much better and wish you continued imrovements.

Keep us posted if you can.

Drury
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Postby ozarkcanoer » Sun Aug 01, 2010 6:53 pm

Good blog lucky !!!! I am getting liberated August 17 so it is good to read about your experience. I have wondered why we don't hear any news from Georgetown. I am glad you posted your blog info hear. There are so many websites and blogs now that I just can't keep up with them all and I love reading them. My wishes for continued improvements...

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Postby lucky125 » Sun Aug 01, 2010 7:23 pm

ozarkcanoer wrote:Good blog lucky !!!! I am getting liberated August 17 so it is good to read about your experience. I have wondered why we don't hear any news from Georgetown. I am glad you posted your blog info hear. There are so many websites and blogs now that I just can't keep up with them all and I love reading them. My wishes for continued improvements...

ozarkcanoer


I am thrilled that you finally have a date. You have been such a wonderful cheerleader for so many. You deserve great success with your procedure! I look forward to reading about your experience very soon.

Best of luck,
Nicole
Liberated at Georgetown U. 3/3/10. Subsequent procedures at U of Maryland with Dr. Ziv Haskal 7/30/10, 12/2/10, 5/11/11. http://myliberationadventure.blogspot.com
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Postby gothicrosie » Sun Aug 01, 2010 8:05 pm

Nicole,

Nice job. Thank you for posting that update. Congratulations on finding such a wonderful IR. I will be treated in the coming weeks and think I have found someone as compassionate as yours.

I look forward to reading of your continued improvements. I hope his aggressive approach works better for you this time around.
Best,
Rosie
My blog: http://gothicrosie.wordpress.com/
transverse myelitis May '07 & optic neuritis Oct '07
DXd RRMS Dec. ‘07: No lesions & 3 OG bands
Hubbard MRV scan Jun. ‘10/CCSVI Jul. '10
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Postby elyse_peace » Sun Aug 01, 2010 9:45 pm

Nicole -
Congratulations. Thank you for the update. It is uplifting to hear of your improvements. May there be greater improvements.
Blessings to you. :)
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Postby erinc14 » Mon Aug 02, 2010 7:43 am

Very good! Thank you very much .
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Postby erinc14 » Mon Aug 02, 2010 7:44 am

Very good! Thank you very much .
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