I only have one lesion in my spinal cord, no further attacks, no brain lesions, no o-bands, normal evoked (visual) potentials. So my docs have labelled me as "Transverse Myelitis".
Among many other symptoms, I did suffer from intense migraines on the left side of my head, especially when lying down. I had azygous 100% blocked and left internal jugular stenosed more than 90%.
My husband has kindly shared his experience in my facebook of how he assessed the risks of the test and treatment I wanted to have for CCSVI.
There you can see how I have evolved after the angioplasty 18 weeks afterwards.
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.