Does anyone with CCSVI have 'super hearing' ?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Does anyone with CCSVI have 'super hearing' ?

Postby adamt » Mon Aug 02, 2010 3:09 pm

I have CCSVI, not treated yet, and for as long as i can remember i have very sensitive hearing

i tend to hear things others dont, even from long distances away

i also sometimes get the 'heartbeat' pulse in my ear when sleeping


is the super sensitive hearing common with CCSVI patients?
User avatar
adamt
Family Elder
 
Posts: 304
Joined: Thu Mar 11, 2010 4:00 pm

Advertisement

Re: Does anyone with CCSVI have 'super hearing' ?

Postby girlgeek33 » Mon Aug 02, 2010 3:13 pm

adamt wrote:I have CCSVI, not treated yet, and for as long as i can remember i have very sensitive hearing

i tend to hear things others dont, even from long distances away

i also sometimes get the 'heartbeat' pulse in my ear when sleeping


is the super sensitive hearing common with CCSVI patients?


I had to giggle when I read this. I don't know if it is linked but I do! I can hear my son using his video game controller when I am downstairs with the tv on!
User avatar
girlgeek33
Family Elder
 
Posts: 150
Joined: Thu Nov 26, 2009 4:00 pm
Location: NJ

Postby colapesce » Mon Aug 02, 2010 3:20 pm

haha yes! And if an ambulance/police car goes by with the siren on it's awful! People think I'm a drama queen as I put my hands over my ears and turn away :) I though it came from having bad eyesight so the ears were compensating for that.... dunno
User avatar
colapesce
Family Elder
 
Posts: 156
Joined: Thu Dec 10, 2009 4:00 pm
Location: London, UK

Postby elyse_peace » Mon Aug 02, 2010 4:27 pm

:) yes. I thought it was the lyme disease. hyperacuity. very sensitive to sound, vibration, and I feel like I've taken a bite out of anything I smell. housemate thinks I'm a drama queen!
User avatar
elyse_peace
Family Elder
 
Posts: 173
Joined: Thu Dec 31, 2009 4:00 pm
Location: Putnam, NY

Postby NormB » Mon Aug 02, 2010 4:52 pm

Ditto here with the tintinnus on top, regular kitchen work sounds like taking out the dishes or cutting veggies on a glass surface startles me everytime.


Norm
'92 diag RR - '05 SP
On LDN since Sept. 2012 with better quality of life.
User avatar
NormB
Family Elder
 
Posts: 111
Joined: Thu Jan 07, 2010 4:00 pm
Location: Near Ottawa Canada

Postby adamt » Tue Aug 03, 2010 2:22 am

thanks for the replies,

looks like sensitive hearing and CCSVI may be linked then,

i read the 'heartbeat; sound could be related to ccsvi too

it must be the blocked/constricted veins enhancing the sound, but no idea why or how
User avatar
adamt
Family Elder
 
Posts: 304
Joined: Thu Mar 11, 2010 4:00 pm

Postby thisisalex » Tue Aug 03, 2010 4:16 am

same thing here! sensitive hearing, sensitive smelling
OMG
:)

but sometimes my ear gets plugged in very rapidly and stays for a minute
User avatar
thisisalex
Family Elder
 
Posts: 218
Joined: Wed Dec 02, 2009 4:00 pm
Location: Hungary

Postby Kathyj08 » Tue Aug 03, 2010 4:46 am

I do also. I had the procedure 3 weeks ago and still get the heartbeat in the left ear along with other pulsatile noises. It does seem to be a little milder though since the surgery so hopefully I've not re-stenosed.
Here's an interesting thing.
I've only had a few flare ups in a 30 year period and looking back at my notes from the last flare up, it was my right ear!
My husband just commented on me being a strange case just as I was writing this. (I think alot of us are)
Kathy
User avatar
Kathyj08
Family Member
 
Posts: 74
Joined: Fri Jan 08, 2010 4:00 pm
Location: Indiana, USA

Postby Motiak » Tue Aug 03, 2010 7:27 am

Maybe all CCSVI patients were bit by a radioactive spider that gave us super-hearing and MS. I feel like it'd be much cooler to have ended up as Spider-man.
User avatar
Motiak
Family Member
 
Posts: 87
Joined: Wed Jan 06, 2010 4:00 pm

Postby vivavie » Tue Aug 03, 2010 11:52 am

It makes it difficult to go places or be with a few people at the same time. It makes me tire fast, impatient. I want to get out of my body! Sooooo many unmesurable and invisible symptoms!!! individually there not bad but add them all together, 24/7 and it drives you crazy.
User avatar
vivavie
Family Elder
 
Posts: 171
Joined: Wed May 05, 2010 3:00 pm
Location: QC, Canada

Postby 1eye » Tue Aug 03, 2010 3:04 pm

I have had no sense of smell since a teenager, but since 'MS' I have also had tinnitus, which drives me crazy sometimes. Being 56, I have no real high end left, but in my tinnitus, I do. Also, sometimes I seem to be able to hear high frequencies in so far as they annoy. However this may be a side-effect of an antidepressant I am on. So I thought yes, other people have this too, I'm not so odd. But it seems to be limited to high frequencies being able to annoy me if the treble is up too high, and again it might be venlafaxine. Tell you after Liberation.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2920
Joined: Wed Mar 17, 2010 4:00 pm
Location: Kanata, Ontario, Canada

Postby EJC » Wed Aug 04, 2010 3:18 pm

My partner has this sensitive hearing, it's like a "Spidey Sense" if you ask me, she hears things before the dogs do sometimes!
User avatar
EJC
Family Elder
 
Posts: 616
Joined: Tue Apr 20, 2010 3:00 pm
Location: Surrey, UK

Postby Cece » Wed Aug 04, 2010 5:09 pm

YES...I am very sensitive to the sounds of, say, a computer being left on in a room and giving off that faint electronic buzzing. I picked out our new dishwasher based entirely on its quietness rating (low-end Bosch) and it is a dream!

I am not sure if it is super hearing or just distractibility and difficulty focusing with noise in the background.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
Cece
Family Elder
 
Posts: 9018
Joined: Mon Jan 04, 2010 4:00 pm

Postby snowfire77 » Thu Aug 05, 2010 1:11 am

yes the wifes hearing is super sensitive, she can hear a fart in a thunder storm and her sense of smell is top notch.
User avatar
snowfire77
Getting to Know You...
 
Posts: 12
Joined: Wed May 12, 2010 3:00 pm
Location: Oxford, England

Postby Fliege » Thu Aug 05, 2010 2:53 am

My hearing ist also super sensitive, so you are not alone :)
User avatar
Fliege
Newbie
 
Posts: 7
Joined: Thu Jun 10, 2010 3:00 pm

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service