This Is MS Multiple Sclerosis Community: Knowledge & Support

I have CCSVI, not treated yet, and for as long as i can remember i have very sensitive hearing

i tend to hear things others dont, even from long distances away

i also sometimes get the 'heartbeat' pulse in my ear when sleeping


is the super sensitive hearing common with CCSVI patients?

I had to giggle when I read this. I don't know if it is linked but I do! I can hear my son using his video game controller when I am downstairs with the tv on!

haha yes! And if an ambulance/police car goes by with the siren on it's awful! People think I'm a drama queen as I put my hands over my ears and turn away I though it came from having bad eyesight so the ears were compensating for that.... dunno

yes. I thought it was the lyme disease. hyperacuity. very sensitive to sound, vibration, and I feel like I've taken a bite out of anything I smell. housemate thinks I'm a drama queen!

Ditto here with the tintinnus on top, regular kitchen work sounds like taking out the dishes or cutting veggies on a glass surface startles me everytime.


Norm

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In a perfect world, my Neuro would like to be a vascular specialist.
'92 diag RR - '05 SP

thanks for the replies,

looks like sensitive hearing and CCSVI may be linked then,

i read the 'heartbeat; sound could be related to ccsvi too

it must be the blocked/constricted veins enhancing the sound, but no idea why or how

same thing here! sensitive hearing, sensitive smelling
OMG


but sometimes my ear gets plugged in very rapidly and stays for a minute

I do also. I had the procedure 3 weeks ago and still get the heartbeat in the left ear along with other pulsatile noises. It does seem to be a little milder though since the surgery so hopefully I've not re-stenosed.
Here's an interesting thing.
I've only had a few flare ups in a 30 year period and looking back at my notes from the last flare up, it was my right ear!
My husband just commented on me being a strange case just as I was writing this. (I think alot of us are)
Kathy

Maybe all CCSVI patients were bit by a radioactive spider that gave us super-hearing and MS. I feel like it'd be much cooler to have ended up as Spider-man.

It makes it difficult to go places or be with a few people at the same time. It makes me tire fast, impatient. I want to get out of my body! Sooooo many unmesurable and invisible symptoms!!! individually there not bad but add them all together, 24/7 and it drives you crazy.

I have had no sense of smell since a teenager, but since 'MS' I have also had tinnitus, which drives me crazy sometimes. Being 56, I have no real high end left, but in my tinnitus, I do. Also, sometimes I seem to be able to hear high frequencies in so far as they annoy. However this may be a side-effect of an antidepressant I am on. So I thought yes, other people have this too, I'm not so odd. But it seems to be limited to high frequencies being able to annoy me if the treble is up too high, and again it might be venlafaxine. Tell you after Liberation.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

My partner has this sensitive hearing, it's like a "Spidey Sense" if you ask me, she hears things before the dogs do sometimes!

YES...I am very sensitive to the sounds of, say, a computer being left on in a room and giving off that faint electronic buzzing. I picked out our new dishwasher based entirely on its quietness rating (low-end Bosch) and it is a dream!

I am not sure if it is super hearing or just distractibility and difficulty focusing with noise in the background.

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

yes the wifes hearing is super sensitive, she can hear a fart in a thunder storm and her sense of smell is top notch.

My hearing ist also super sensitive, so you are not alone