This Is MS Multiple Sclerosis Community: Knowledge & Support

Well to chime in here, 3 months ago, I did read at first about a sweedish study, but then again that it was Amsterdam. I think there is some confusion here by the press releases. So has there been 2 or 3 studies?

this is the third negative study, nicko. Now we have Germany, The Netherlands and Sweden. The researcher in this one, the Swedish study posted by Malden, utilized MRV technology and scanned C2-C3 in the neck. See my post above for Dr. Haacke's MRV protocol. It starts at the top of the head, and ends in the chest.
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Apologies accepted.

cheerleader, that's very helpful to know just in case my dr brings it up because I am going to schedule soon. Good to have some concrete info as to why this study is not valid. thanks!

Here is what CTV news says about the study

http://www.ctv.ca/CTVNews/SciTech/20100 ... nt-100804/

hehehe 'multiple scerlosis'

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Jimmy, what that meen?? Are you spaming this serious thread?
You just closed interesting and dynamic thread "Fun with C. Rose" where we we just start to worm up and now this. Ok. I will accept it. You'r the boss.
Best regards, M.

that's how the ctv announcer pronounced it.

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

OK

....and what about C.Rose thread?

So if all of these studies are "junk science" solely because they're not following "the Protocols of the Learned Family Elders of Zamboni", what makes people so sure that the protocols themselves aren't "junk science"?

Also, it is my experience that conspiracy theorists always complain about THEIR protocols, not their own sides protocols.

That's why studies that follow Zamboni's protocols are desirable.



Your experience has not let you down. You are quite right, it is not desirable to attempt to reproduce a protocol whose authors claim does not work.

I'm pretty sure that didn't address anything that I said.

Ladies.. Gents..
Not fluent in medspeak but this just seems obvious.. Dr Zamboni spent years researching a vascular connection to MS.. in that time he developed a particular protocol to diagnose this condition.. How can this theory be confirmed or denied if that same protocol is not exercised?
It's not magic or slight of hand.. it is diagnostic protocol.. why change it? to what end? any change will taint the results?

It does seem odd that the exact Zamboni protocol is not being followed. However it also seems peculiar that variations in technique fail absolutely to detect any ccsvi. It raises interesting questions

1. The Zamboni protocol is the only accurate method to detect ccsvi. Correlates with positive anecdotal results.

2. Alternatively the Zamboni protocol makes it appear that ccsvi exists but in fact the other methods are more accurate and ccsvi is an artificial result that only appears using a flawed method. Correlates with false positives in buffalo study.

My wife tested postive for ccsvi using zamboni method but I'm starting to get nervous that only "zambonis" method works...any alternative method used to detect it results in zip...

yes, but, wouldn't the beginning be the right place to start? if the theory was replicated exactly and the results varied widely, this would have more impact.. ?

Is it uncommon to have a singular diagnostic protocol?