This Is MS Multiple Sclerosis Community: Knowledge & Support

The Westmount Square Clinic apparently have their 'own' method, which explains why their prevalence numbers are different too. I know they use valsalva, which is not allowed in detecting CCSVI.

Let's face it, CCSVI is a lot less work if you can't find it.

I would like to encounter a clinician with an open mind, not one who deliberately sabotages possible diagnosis.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

partial edit complete. more to come (will remove content related to thread moderation). UPDATE - finished removing my moderation comments. let's keep it clean from now on, thanks!

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

(emboldening mine)

The problem with that idea is that the IJVs return blood when the body is supine, in which case gravity has no part in the return. The vertebral veins can rely on gravity, and I am uncertain if they are valved.

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My name is not really Johnson. MSed up since 1993

johnson what's the population of saltspring? do you know anyone with the surname duketow, sounds like duKEToh?

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

The words below are those of an amateur, based only on what seems like reason to me. The problem I have is that blood must return to the heart while lying down/asleep. So 2 ways: pressure from the circulating blood (siphon action), or the thoracic and other muscular pumps. Gravity is not much involved. The heart drives the circulation, so if it is that, it will be pulsatile, and driven by pushing the blood through those capillaries. If is is the thoracic and other muscles, not as much. It will either assist or reflux the blood circulated by the heart. I suppose that is why my breathing stops sometimes. Just to let my circulation catch up with the reflux. It is when gravity is absent that the reflux is more likely, and it will be pulsatile, since the heart is still beating, but it will be mainly driven by breathing, unless a heart valve is broken.

The heart valve can be part of it if a certain condition exists: tricuspid insufficiency. The heart valve on the right side that prevents reflux of venous blood between heart chambers, fails: it has symptoms much like (indistinguishable from?) 'MS'/CCSVI. In this case the reflux will be much more pulsatile, so we should be able to distinguish, and it should be harder for gravity to overcome it.

Can we determine how much reflux is happening by how long sleep apneas are?

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

If any of that is on the right track, lack of energy also ensures when we are upright the breathing remains less active. Exercise sounds like it will be ok as long as the heart strength and rapidity keeps up with breathing and use of muscles. I would think the whole system is different, and maybe less prone to reflux during exercise?

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Is this, or other bad valve combo, PPMS? Do you never get a remission because you get reflux all the time, even when upright?

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Hi
I'm new here. I just wanted to say that the Swedish study was seen here in Sweden as a "commissioned job". Really bad work.
But, we work hard to make the CCSVI happen here in Sweden too inspite of our neurologists.

Thanks to all of you working to get the world to know about CCSVI!

Don't worry. Its not representative of what is happening in Sweden ...

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A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck