CCSVI UK

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI UK

Postby James78 » Thu Aug 05, 2010 6:25 am

Hello all,

If anyone knows of any vascular surgeons in the UK that are prepared to (and know how to) scan/ veno correctly for CCSVI I'd really appreciate a PM. If they can do the procedure even better but I know thats unlikely presently....I can be discrete if advised to be

I know I have the alternatives of going abroad, and there is the Essential Health Clinic waiting list (which I am on) but they advise they wont be able to see me until early next year, I have gone downhill these past few weeks and dont want to have to wait that long if I can help it.

I was also looking into the idea of giving blood to (possibly) ease symptoms but we cant give blood if we have MS can we? Is there anywhere you can go to have the blood removed even if wont be used by another patient?

My neuro wont even give ccsvi the time of day, its all poppycock to him, if there is even 1% chance that this can help me I will grab it with both hands, why cant these people understand that, whats the alternative stick me in a dark room with a bunch of anti depressants....I would give them such a hell of a fight if I got better or stopped progressing....


Any help appreciated all

Thankyou
James
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Postby silverbirch » Thu Aug 05, 2010 11:02 am

James welcome to the forum

Hyperbaric Oxygen Therapy - look into it MSERS go into a chamber that oxgenates the blood this can be done prior to CCSVI and after they are located in ms centres - I myself want to do it and am awaiting info pack on this I will inform you more should you be interested let me know..

Blood donations I was just sent my award for giveing blood this was sent once I told them I have MS (so no more blood donations for me).
Call them sometimes they do need blood for research ask to be on that list..

Maybe try green tea I bought twinnings brand in tesco and I add manuka honey I understand it to take away toxins and cheleates iron that is stored. this was my own theory and hope I am correct plse check out for yourself.

In this forum look out for Jimmylegs she is great at Vitimins follow /read her threads they made sence to me. When I first came to the forum I took no vit when I had finished in this forum I started takeing what I believed would help any how I had my omega's done at EHC and my levels were excellent Dr Gilhooly of EHC looked at my list and said for someone new to( MS DX2009 )I was taken all the correct VIT and as I said jimmylegs has been my only advisor or if you like I stalked her threads she always gives good advise

CCSVI and the UK this will happen as more and more Vascular guys globally are moveing out of their confort zone - the UK will follow and it would not surprise me if there was movement before XMAS (thats my bench mark) EHC are trying and will achieve ..........

Hope this of help mate
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Postby James78 » Thu Aug 05, 2010 3:21 pm

Thankyou silverbirch, you are very kind to take the time to write to me...I have already bought a ton of vitamins based on EHC and jimmylegs advice......weird though you mention manuka honey, I have been using that for years, longtime before MS reared its head......thanks again
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Postby Interrupted » Thu Aug 05, 2010 5:38 pm

James,

I wouldn't shrug off the idea of going abroad necessarily. I've been swaying back and forth between going with EH or Euromedic, and I personally feel i'd rather go with experience. Much as i'd rather have the procedure done in the UK ideally, I know that the risk stats shoot way up with inexperience. So for me it came down to, "who does this day in and day out?"

Just my little add on thought. All the best to you wherever you go :)
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