Intervent.Radiologist/ Vas.Surgeon List needed for SW Penna

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Intervent.Radiologist/ Vas.Surgeon List needed for SW Penna

Postby Kate_PghPA » Thu Aug 05, 2010 1:52 pm

Please help!
I want to get liberated but my HMO insurance is only local: ( Univer.of Pittsburgh Med Ctr) UPMC + budget is tighter than my constricted neck veins.

Besides these TWO Sites for IR/Vascular:

http://www.ucomparehealthcare.com/drs/p ... iologists/

and vascular surgeons:
http://www.ucomparehealthcare.com/drs/p ... _surgeons/

The THIRD IR/Vasc. list is known but do NOT know it...anyone have a clue?
Thank you in advance!! kate
Venoplasty 12/26/10 Vas.Surg/ Pgh,PA Angio'd Both IJV

2/9/11 F/U Transcranial Doppler: flowing well
8/15/11 Hosp. Exac. "MS" 1st Spinal lesions EVER seen/ MRI
9/7/11 F/U T. Doppler: flowing well
Kate_PghPA
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Location: Near Pittsburgh,PA

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Postby welshman » Thu Aug 05, 2010 2:38 pm

Check out -

www.forumonhealth.com

Go to "featured entries" and click on "Denise Manley's New List".

I don't think it has anyone in Pa. but you might find someone close.
Good luck.
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Denise Manley's info: excellent!

Postby Kate_PghPA » Thu Aug 05, 2010 6:46 pm

welshman wrote:Check out -

www.forumonhealth.com

Go to "featured entries" and click on "Denise Manley's New List".

I don't think it has anyone in Pa. but you might find someone close.
Good luck.


Thank you so much for pointing me toward Denise Manley...she has some great Videos of You Tube as well as other info...

Appreciate your input Welshman, Kate

PS...I love the Welsh!!!
Venoplasty 12/26/10 Vas.Surg/ Pgh,PA Angio'd Both IJV

2/9/11 F/U Transcranial Doppler: flowing well
8/15/11 Hosp. Exac. "MS" 1st Spinal lesions EVER seen/ MRI
9/7/11 F/U T. Doppler: flowing well
Kate_PghPA
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Posts: 43
Joined: Tue Apr 06, 2010 2:00 pm
Location: Near Pittsburgh,PA

Postby Cece » Thu Aug 05, 2010 8:02 pm

I don't want to even ask but are the docs on this list actually 'out'? Or is it the same list with the same problems from last week?
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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If you post and ask, I bet someone else will know.

Postby Kate_PghPA » Sun Aug 08, 2010 1:26 pm

Cece wrote:I don't want to even ask but are the docs on this list actually 'out'? Or is it the same list with the same problems from last week?


Sorry Cece... not sure if you're asking me...I believe I am looking for a Public list of IRs, Vascular Surgeons
...in fact YOU kindly recommended 2 of the three that Allegedly exist.
Venoplasty 12/26/10 Vas.Surg/ Pgh,PA Angio'd Both IJV

2/9/11 F/U Transcranial Doppler: flowing well
8/15/11 Hosp. Exac. "MS" 1st Spinal lesions EVER seen/ MRI
9/7/11 F/U T. Doppler: flowing well
Kate_PghPA
Family Member
 
Posts: 43
Joined: Tue Apr 06, 2010 2:00 pm
Location: Near Pittsburgh,PA

Re: If you post and ask, I bet someone else will know.

Postby Cece » Sun Aug 08, 2010 2:18 pm

Kate_PghPA wrote:
Cece wrote:I don't want to even ask but are the docs on this list actually 'out'? Or is it the same list with the same problems from last week?


Sorry Cece... not sure if you're asking me...I believe I am looking for a Public list of IRs, Vascular Surgeons
...in fact YOU kindly recommended 2 of the three that Allegedly exist.

Just asking in general...the link posted above was to DM's list of CCSVI docs, which never did have any PA docs on it, IIRC.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
Cece
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Postby Kate_PghPA » Mon Aug 09, 2010 11:09 am

I did just call Shadyside Hosp IR dept...spoke only to receptionist, who kept insisting I needed to get my PCP to give specifics on 'venous compression'...
Later on I explained ...Insists she never heard of MS venoplasty,etc.
Oh God!
what do you think they do with a letter???!!

JR, mshusband have tried to get through the Pittsburgh Med.Cartel
...nothing! What's wrong with Pittsburgh??!!!!!!!!
Venoplasty 12/26/10 Vas.Surg/ Pgh,PA Angio'd Both IJV

2/9/11 F/U Transcranial Doppler: flowing well
8/15/11 Hosp. Exac. "MS" 1st Spinal lesions EVER seen/ MRI
9/7/11 F/U T. Doppler: flowing well
Kate_PghPA
Family Member
 
Posts: 43
Joined: Tue Apr 06, 2010 2:00 pm
Location: Near Pittsburgh,PA

Postby IHateMS » Mon Aug 09, 2010 11:33 am

Kate_PghPA wrote: What's wrong with Pittsburgh??!!!!!!!!


same thing that is wrong w/ morgantown..... geez......
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Postby nellie » Mon Aug 09, 2010 4:46 pm

Just a bit of advice for letter writers. Mark personal on the envelope. I saw a vascular surgeon and I asked if he had received other letters as I read that others had sent to all vascular surgeons here & his name was on the vascular surgeon list here. He answered "no". I really feel unless they are marked personal they don't get beyond the front desk. Unfortunately upon seeing him he refused testing & treatment but I do know he read my letter. Here in Minnesota I found 2 interested in seeing me. One cancelled before my appt. & the other is the surgeon I indicated above. Both said they touched base with Mayo & would not proceed after talking to them. Mayo is definetely not willing to proceed now.
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