What happened to this forum???

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby girlgeek33 » Sat Aug 07, 2010 11:19 am

I have found my CCSVI/MonSter family to Be the most supportive, caring group of people I have ever known. Very few times have I seen any of them initiate negativity, with maybe the exception of 1 or 2 people, out of thousands! Tims has been an amazing source of information for me for the last 6 years, even though I'm new to the forums. We are up against some serious critics with CCSVI, sad but true. We all try to stay above the fray but when our character is called into question, it can be tough. We are all human, best to remember we make human mistakes sometimes...
User avatar
girlgeek33
Family Elder
 
Posts: 150
Joined: Thu Nov 26, 2009 4:00 pm
Location: NJ

Advertisement

Postby IHateMS » Sat Aug 07, 2010 11:30 am

i do not read as much here.... perhaps i am only interested in the research and staying local
User avatar
IHateMS
Family Elder
 
Posts: 168
Joined: Sun May 17, 2009 3:00 pm

Postby selkie » Sat Aug 07, 2010 11:59 am

This forum is very helpful - I especially appreciate Dr. Sclafani's thread, and also the kind people who have sent me PMs with advice. Sometimes I think I'm sure about a certain aspect of MS, only to find someone here present new evidence for me to consider.

I hope I've never been rude to anyone, because I've been to several MS forums, and this one has been the most helpful of all.

We're all in this together so to speak. And it's been so helpful to have a doctor here who is willing to share his knowledge, to have syposium videos posted for us to see, and the sharing of experiences.

We need each other because a lot of us don't have this kind of support from our personal medical team, friends, and/or family.

thanks to all
User avatar
selkie
Family Elder
 
Posts: 222
Joined: Sat Nov 21, 2009 4:00 pm

Postby concerned » Tue Aug 10, 2010 8:51 pm

AlmostClever wrote:I think the fact that you can't hide behind an anonymous identity on FaceBook would explain the better behavior there.

Signed,

Anonymous


No more hiding!!! come on! let's party!!!!
concerned
 

Previous

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users