This is a big one for me, having optic neuropathy as my number one complaint in years previous and since my initial CIS Dx, it wasn't until 2008 when it flared up again in full force, that I learned from the opthamalogist about colors. That was a game changer for me, insofar as SEEING, daily, the effects, besides the otherwise nebulous sx that occurred from time to time, usually in heat or stress situations.
She held up the bottle during the exam, it had a red top, I closed left eye, then right eye, the left was bright and normal red, the right, oh boy muddy looking brick color.
Thats when it finally dawned on me that yes, I really DO have some deficits going on, and damage, and its not just about all those other global Sx and fatigue and memory and wall rubbing balance issues whatever.
I found myself for many months after that, doing the left/right closing, at every traffic light, at cars, at colors, and it was pronounced and very very real. Green/left was green, green right was greyish green. I made a game out of it, seeing how many different colors I could see in one day out of two eyeballs.
To this day, and without interruption, even right now, both are the same.
CCSVI came and that all went away. Sorry I cannot put it in a test tube, or measure it, or prove it, or even that it proves anything.
But it keeps me handing out Marie's book to the listening ear, in hopes that someone else can experience likewise. Whatever it is and however the process works, it worked for me, and four summers in a row now have me saying, " bring on the heat!".
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko
, Virtually symptom free since, no relap