One week!

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

One week!

Postby BooBear » Fri Aug 06, 2010 2:09 pm

To the tune of the song from the same name by Bare Naked Ladies:

It's now one week til they'll look at me
See if my veins are stuck and all twisty
Six days til I board the plane
To get my blood flowing right again
Five days til I come back home
I know that with this team I won't be alone
Next week I'll lie in bed
But this time I'll be liberated!

:D
Three veins angioplastied.  One renewed life.  
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Postby PCakes » Fri Aug 06, 2010 2:32 pm

!!!!!!!!!! :D !!!!!!!!!
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Postby Lyon » Fri Aug 06, 2010 3:26 pm

.
Last edited by Lyon on Sun Nov 20, 2011 7:27 pm, edited 1 time in total.
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Postby Trish317 » Fri Aug 06, 2010 4:15 pm

Thinking of you and sending you lots of good thoughts and prayers....just Believe....
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Postby sbr487 » Fri Aug 06, 2010 9:42 pm

Lyon wrote:Just because I question CCSVI doesn't mean that I don't wish the very best for you because I surely do and regardless of ANYTHING ELSE I sure can understand the need of someone to attempt to save themselves by any means necessary.

It's all going to be good.


I wish everyone felt this way. All along I have tried to put myself in Neuros place and imagine how I would have behaved. I would have felt sad that ccsvi questions my line of thought, it pokes fun at me that forgot to see out of the box ... but I am not sure if I would have opposed ccsvi to the extent of willful damage despite seeing so many MS patients whose life is all about that is bad about what life is ... I then shake my head and continue with my work ...
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck
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Postby Algis » Fri Aug 06, 2010 10:18 pm

You'll be fine Bear :)
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Postby BadCopy » Fri Aug 06, 2010 10:25 pm

[quote]xcbbghnghn
Last edited by BadCopy on Sat Aug 07, 2010 7:26 am, edited 1 time in total.
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boo

Postby blossom » Fri Aug 06, 2010 11:07 pm

the very best to you. you will do great.
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Postby BadCopy » Sat Aug 07, 2010 7:22 am

I am there a week after you Boo! Finally starting to seem like it is actually going to happen. Take care and wish you the best.
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Postby elyse_peace » Sat Aug 07, 2010 11:03 am

:D :D :D :D :D
Boobear, What they said! You go girl!
Excited for you, wishing this is a dream come true.
BadCopy - wishing you a great new future.
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Postby BooBear » Sat Aug 07, 2010 4:01 pm

Thank you, everyone, for all your best wishes. It is very real now and I am cautiously optimistic. I hope to report something to everyone on Saturday or Sunday of next week.

Fingers crossed!

Thanks to all of you for everything, really. Without this board, and without all of you, I may never have this chance. With 36 lesions and counting, I feel like I am a walking time bomb to complete disability. Next Friday, I hope to deactivate that bomb and live my life again. :)
Three veins angioplastied.  One renewed life.  
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Postby newlywed4ever » Sat Aug 07, 2010 4:47 pm

My daughter and I got back last night and I am thrilled with improvements - not earth shattering but definitely impressive. Warm foot & calf, better balance, maybe better heat intolerance (hard to say since it cooled down today), while sitting with feet on stool I can point toes upward towards my head (which I couldn't do before). I will now pursue PT to work on foot drop. I had 100% blockage in left IJV and azygous was also angioplastied. My daughter had 50% blockage in right IJV. My prayers are with you. I loved Dr S, the facility and all the staff. My prayers are with you!!
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Postby AlmostClever » Sat Aug 07, 2010 5:03 pm

That's great newlywed! (I was waiting to hear how it went!!!)

Good luck Boo!
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby newlywed4ever » Sat Aug 07, 2010 6:40 pm

Thank you, AlmostClever - I look forward to Boo, ozark (8/17) and your (8/26) procedures!!
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Postby PCakes » Fri Aug 13, 2010 12:19 pm

'virtual' pacing and 'real' thoughts for today! :D
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