Real facts . . think outside the BOX FOLKS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: scorpion -

Postby L » Mon Aug 09, 2010 5:33 pm

scorpion wrote:I will be the first in line.


That's a bit optimistic! I don't mean the results of studies, I mean the length of the line..
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Postby scorpion » Mon Aug 09, 2010 5:37 pm

:lol:
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Postby L » Mon Aug 09, 2010 5:40 pm

scorpion wrote::lol:


I was pleased to read that post all the same, I mean my response didn't really reflect that.. :)
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scorpion - Research papers, common sense and you tube -

Postby leooreo » Mon Aug 09, 2010 6:41 pm

And my first post re CCSVI.

That is why I do not believe you have ms (my opinion only) - you are very closed minded. Not even curious.

In the legal profession one always reads between space.
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Postby BadCopy » Tue Aug 10, 2010 4:28 am

I am with you leooreo

I used to do the MS150 and ask family/friends/neighbors to help out too. They do give back BUT ITS FROM THE MONEY THAT WE RAISE FOR THEM. Obviously there are people that feel they need the MS Society and those people should give to them. Those of us that have put 2+2 together need to put our money behind the best bet (CCSVI).

And anyone with an open mind that wants a history on the Vascular theory behind MS just need to go up to the STICKY POSTS and look for the POST RESEARCH HERE thread. Read through it and it becomes painfully obvious we should have been where we are now 30 years ago.
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Postby BadCopy » Tue Aug 10, 2010 4:37 am

I went to Dr Franz Shellings website, downloaded his book of info and sent him an email thanking him for everything he has and continues to do.

To my surprise I got an email back answering my question as to why he wasn't able to get this out years ago. Basically he was held out by money mills on the auto immune theory side od things. I suggest that if you have the time go there and thank him for all he has done.
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Postby TMrox » Tue Aug 10, 2010 5:03 am

Thanks BadCopy,

I did not know about Schelling's free e-book. Here is the link where to download it:

http://www.ms-info.net/ms_040504.pdf

Rox
Diagnosed with Transverse Myelitis in December 2008. Inflammatory demyelination of the spinal cord (c3-c5). No MS, but still CCSVI.
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Postby BooBear » Tue Aug 10, 2010 5:32 am

Printing it out now- should be good reading on the plane. To Albany. This Thursday. To get Liberated. :)
Three veins angioplastied.  One renewed life.  
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Postby BadCopy » Tue Aug 10, 2010 7:22 am

BooBear wrote:Printing it out now- should be good reading on the plane. To Albany. This Thursday. To get Liberated. :)


Thats right! I forgot you are on your way there. Have a great trip BooBear!!

8)
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Postby BooBear » Tue Aug 10, 2010 12:37 pm

Thanks, BadCopy!!! Just three more days.
Three veins angioplastied.  One renewed life.  
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If symptoms get better over time

Postby leooreo » Tue Aug 10, 2010 3:49 pm

If symptoms get better over time (heal) as the body miraculously does, why on Earth would we need respite care, wheelchairs, and someone on the other side of the phone trying to comfort our being crippled?

I think the MS Society understands that and if you saw the video on you tube, Dr. John Murray was so nervous his fingers were rattling all over the table answering questions from media - GOT TO SEE IT TO BELIEVE IT.
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Re: scorpion - Research papers, common sense and you tube

Postby scorpion » Tue Aug 10, 2010 5:09 pm

leooreo wrote:And my first post re CCSVI.

That is why I do not believe you have ms (my opinion only) - you are very closed minded. Not even curious.

In the legal profession one always reads between space.


Sorry Leohero. I am from now on taking the high road and not responding to such silly posts. I believe that most people who come to this forum see the things that are posted here and have a good laugh and from now on I will do the same!
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Postby leooreo » Thu Aug 12, 2010 1:28 pm

Scorpion - for someone who claims you have ms - your behavior is completely inconsistent with one's wanting to FIND A WAY OUT!!!!!!!!!!!
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Postby jimmylegs » Thu Aug 12, 2010 2:12 pm

Rules of the Board
http://www.thisisms.com/ftopicp-4760.html#4760
Mon Dec 06, 2004 4:57 am
Personal attacks, which can consist of slightly veiled innuendo or sarcastic comments aimed at the poster as opposed to the content of the post, are not tolerated at This is MS. We of course reserve the right to ban or suspend any member who violates this rule.
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: scorpion -

Postby elliberato » Wed Aug 18, 2010 4:43 pm

scorpion wrote:
leooreo wrote:someone is taking out my posts. Why - I have right to post my opinions. Real facts is we need. not people from ms society - scanning the posts.

Scorpion - have you been tested for ccsvi?


No I have not and I am not interested in getting tested. As of yet I have seen nothing to convince me that CCSVI even exists and if it does that it has anything to do with MS. Other people have different opinions and that is fine. If more research is done and an association between MS and CCSVI is shown and it is proven that "opening up veins" stops progression or cures MS I will be the first in line.


You have a point SCORP. It seems you hear all about how people are excited prior to their procedure but then after they have it you never hear from them again? Whats up with that? It seems to me the results have much to be desired...I for one had the procedure almost 7 months ago and continue to decline...
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