elliberato wrote:scorpion wrote:leooreo wrote:someone is taking out my posts. Why - I have right to post my opinions. Real facts is we need. not people from ms society - scanning the posts.
Scorpion - have you been tested for ccsvi?
No I have not and I am not interested in getting tested. As of yet I have seen nothing to convince me that CCSVI even exists and if it does that it has anything to do with MS. Other people have different opinions and that is fine. If more research is done and an association between MS and CCSVI is shown and it is proven that "opening up veins" stops progression or cures MS I will be the first in line.
You have a point SCORP. It seems you hear all about how people are excited prior to their procedure but then after they have it you never hear from them again? Whats up with that? It seems to me the results have much to be desired...I for one had the procedure almost 7 months ago and continue to decline...
Hope it's fine to add my two-cents...
If the people who were excited before their procedure are not heard from again after being treated...it is possible that these people are playing catch-up and happily living their newly-improved lives.
After losing so much to this illness and then having to go through all the stress that we have been under in trying to access CCSVI treatment, one can understand anyone just wanting to break free from what was and embrace what is.
Let's hope they are busy making the most of this hot and humid summer now that they no longer suffer heat intolerance, rather than imagine their health is in decline.