This Is MS Multiple Sclerosis Community: Knowledge & Support

Hope it's fine to add my two-cents...

If the people who were excited before their procedure are not heard from again after being treated...it is possible that these people are playing catch-up and happily living their newly-improved lives.

After losing so much to this illness and then having to go through all the stress that we have been under in trying to access CCSVI treatment, one can understand anyone just wanting to break free from what was and embrace what is.

Let's hope they are busy making the most of this hot and humid summer now that they no longer suffer heat intolerance, rather than imagine their health is in decline.

Once the procedure is done, people are no longer in the planning and the decision making stages, which are when the support and information here is especially useful.

_________________
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

[
b]Results of CCSVI study available[/b]

An important study on CCSVI is underway and early results are available


There have probably been over 100 Canada MS Patients treated for CCSVI by now. Each will have reported back or will soon be reporting back to their attending neurologist.


Neurologists keep good records of symptom progression.


The study taking place is the compilation of those ongoing assessments.


The data is there and the database is growing.


With MS, it has been impossible to predict the future but the past is known and one of the big questions with CCSVI treatment is does it improve conditions over what was there in the past. Does it improve conditions over what is known to occur with a placebo effect?


Those questions can be answered tomorrow.


Put a call out to the relevant neurologists and their patients. Tally the data.


Is the Government doing this work? Is the MS Society? Is the association of Neurologists? Is anyone?


I would like to know what has been going on.


CharlieC