Real facts . . think outside the BOX FOLKS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Real facts . . think outside the BOX FOLKS

Postby leooreo » Sat Aug 07, 2010 4:11 pm

Finally some facts that make sense. impeded Blood flow to brain and heart. Deoxygenated blood, can't escape completely, REFUX, inflammation (pus), lesions. Society wants to stay in business to provide you with wheelchairs and respite care and MANAGE BEING NEAR CRIPPLED OR WORSE – This ccsvi procedure (When perfected, hopefully soon) will end many careers at the society as well as tens of billion $$$$ from the drug companies and neuro.. that bank of your repeat business from insurasnce monies. So what if it does not last years do it again. they will perfect this procedure. FINALLY, A PROCEDURE THAT COMBATS SYMPTOMS. Blood Nourishment back to atrophied body will take time to heal. EAT RIGHT. STOP EXPECTING IMMEDIATE GRATIFICATION AND BE VOCAL AND FIGHT FOR THIS PROCEDURE TO BE PERFECTED. VASCULAR surgeons, etc. ARE LEARNING AS FAST AS THEY CAN. Don't donate to MS SOCIETY. ONLY TO WHERE THEY ARE DOING RESEARCH TO SAVE YOU FROM BEING CRIPPLED.

HARSH REALITY - BUT THE TRUTH.

The pushback is strong. Don’t give a dime to MS Society. MS SOCIETY AND THE EMPLOYEES (30,000 OR SO)IT IS A CONSPIRACY. FIGHT, FOR JUSTICE.
User avatar
leooreo
Getting to Know You...
 
Posts: 23
Joined: Fri Aug 06, 2010 3:00 pm

Postby erinc14 » Sun Aug 08, 2010 5:47 am

Right :!: :!:
User avatar
erinc14
Family Elder
 
Posts: 599
Joined: Sat Jun 12, 2010 3:00 pm
Location: Montreal

Re: Real facts . . think outside the BOX FOLKS

Postby scorpion » Sun Aug 08, 2010 8:58 am

leooreo wrote:Finally some facts that make sense. impeded Blood flow to brain and heart. Deoxygenated blood, can't escape completely, REFUX, inflammation (pus), lesions. Society wants to stay in business to provide you with wheelchairs and respite care and MANAGE BEING NEAR CRIPPLED OR WORSE – This ccsvi procedure (When perfected, hopefully soon) will end many careers at the society as well as tens of billion $$$$ from the drug companies and neuro.. that bank of your repeat business from insurasnce monies. So what if it does not last years do it again. they will perfect this procedure. FINALLY, A PROCEDURE THAT COMBATS SYMPTOMS. Blood Nourishment back to atrophied body will take time to heal. EAT RIGHT. STOP EXPECTING IMMEDIATE GRATIFICATION AND BE VOCAL AND FIGHT FOR THIS PROCEDURE TO BE PERFECTED. VASCULAR surgeons, etc. ARE LEARNING AS FAST AS THEY CAN. Don't donate to MS SOCIETY. ONLY TO WHERE THEY ARE DOING RESEARCH TO SAVE YOU FROM BEING CRIPPLED.

HARSH REALITY - BUT THE TRUTH.

The pushback is strong. Don’t give a dime to MS Society. MS SOCIETY AND THE EMPLOYEES (30,000 OR SO)IT IS A CONSPIRACY. FIGHT, FOR JUSTICE.


Just a FYI for the new people coming to this forum. There are a couple of people on the fringe who actually believe what is written above makes sense but most of us fall between having serious doubts about CCSVI to those who believe it is the real deal and want more research to prove it. Sorry but occasionally posts like this appear but hey this is an open forum!
User avatar
scorpion
Family Elder
 
Posts: 1323
Joined: Wed Nov 05, 2008 4:00 pm

Postby NormB » Sun Aug 08, 2010 2:51 pm

Scorpion said" but hey this is an open forum!


Of course this open forum is the one that carries most hope for us MS'ers
with more than ample discussions on the merits of CCSVI liberation
procedure. As a canadian our health care system have invested more than $100,000 for my rehabilitation from Avonex for a year, Rebif 44 for another then on chemo for three years, all with the blessing from Ms Society and my Neuro. Results: Nothing, Nada, I'm a patient with SPMS now for the last 4 years going downhill by the month.
Now we have a new hope with the CCSVI procedures that we read the success stories from their treatment. Sure research is needed but for its cost research can be done in conjunction with treatment at the same time.
Saskatchewan has committed itself to a trial for all their MS patient with treatment to boot. Who would not applaud such a decision especially from those having MS.
Hope is all we have at this point with many having had the procedure are living their hope as realities on the good side.

I say this forum is for people from all over the world to share their good experiences with the liberation as it is refreshing to see their courage embracing this new procedure and come back here posting their experience whether bad or good but for quite a few mostly good causing the Ms Societies and narrow minded Neuros a disturbance above their comfort level.

Take Care All

Norm
[/quote]
'92 diag RR - '05 SP
On LDN since Sept. 2012 with better quality of life.
User avatar
NormB
Family Elder
 
Posts: 108
Joined: Thu Jan 07, 2010 4:00 pm
Location: Near Ottawa Canada

Re: Real facts . . think outside the BOX FOLKS

Postby ikulo » Sun Aug 08, 2010 3:18 pm

leooreo wrote:
The pushback is strong. Don’t give a dime to MS Society. MS SOCIETY AND THE EMPLOYEES (30,000 OR SO)IT IS A CONSPIRACY. FIGHT, FOR JUSTICE.


You act as if the MS Society exists only to push treatments. I have volunteered with them and can say that they provide so many needed services to MSers like giving legal assistance, financial help and even the simple act of answering a PwMS's question. The majority of the staff have much more vested with this organization than just a paycheck. Take a step back and look at the big picture.
User avatar
ikulo
Family Elder
 
Posts: 444
Joined: Tue Aug 04, 2009 3:00 pm
Location: colorado

removed double posting

Postby leooreo » Sun Aug 08, 2010 3:34 pm

removed double plosting
Last edited by leooreo on Sun Aug 08, 2010 4:09 pm, edited 1 time in total.
User avatar
leooreo
Getting to Know You...
 
Posts: 23
Joined: Fri Aug 06, 2010 3:00 pm

Postby foreignlesion » Sun Aug 08, 2010 3:45 pm

Although my opinions regarding the MS Society and their role differ from your own, I will not even attempt to dissuade you from your beliefs as you are obviously passionate about how you feel.

However, I would like to simply ask that you refrain from calling people [removed]. Antagonizing people with MS is not the correct way to share your views.
User avatar
foreignlesion
Family Member
 
Posts: 84
Joined: Sun Jul 12, 2009 3:00 pm
Location: Regina, Saskatchewan

Postby Lyon » Sun Aug 08, 2010 3:50 pm

.
Last edited by Lyon on Sun Nov 20, 2011 7:08 pm, edited 1 time in total.
Lyon
Family Elder
 
Posts: 6063
Joined: Wed May 03, 2006 3:00 pm

I apologize -you are not ignorant - but maybe not informed

Postby leooreo » Sun Aug 08, 2010 4:05 pm

I am logical in my thinking. Research oriented.
User avatar
leooreo
Getting to Know You...
 
Posts: 23
Joined: Fri Aug 06, 2010 3:00 pm

Postby elliberato » Sun Aug 08, 2010 5:14 pm

leooreo quote removed


Oreo, Curious...How did you become such a self proclaimed expert on the inner working of the MS Society? Are you involved there? You seem to be a very scorned person. I feel bad for you that you must deal with this anger. I am not sure your situation but if you suffer from MS harboring such anger will not make you feel any better. I am glad however that you were able to get this all off your chest. [comment removed]

leooreo quote removed

[comment removed]

leooreo quote removed

Wow-this is a very strong statement. Is this the logical research you refer to? [comment removed]
User avatar
elliberato
Family Member
 
Posts: 82
Joined: Wed Aug 04, 2010 3:00 pm

Postby BadCopy » Sun Aug 08, 2010 6:19 pm

I don't waste my time arguing with them oreo. People believe what they want to believe. I stopped giving to the MS society a while ago. The drugs put out there surpress some symptoms in some people some of the time. They never claimed to be a cure and they never will be. My money will be with CCSVI from here on out.

The more I research the history of the research that has been on MS it becomes painfully obvious that Vascular is a huge part of the answer not auto immunolopy. Drugs are good for a little but only until you find the underlying issue. And it appears we are approaching that stage now.
User avatar
BadCopy
Family Elder
 
Posts: 141
Joined: Sun May 23, 2010 3:00 pm
Location: 10,000 Lakes

scorpion -

Postby leooreo » Mon Aug 09, 2010 4:36 pm

someone is taking out my posts. Why - I have right to post my opinions. Real facts is we need. not people from ms society - scanning the posts.

Scorpion - have you been tested for ccsvi?
User avatar
leooreo
Getting to Know You...
 
Posts: 23
Joined: Fri Aug 06, 2010 3:00 pm

Re: scorpion -

Postby scorpion » Mon Aug 09, 2010 5:16 pm

leooreo wrote:someone is taking out my posts. Why - I have right to post my opinions. Real facts is we need. not people from ms society - scanning the posts.

Scorpion - have you been tested for ccsvi?


No I have not and I am not interested in getting tested. As of yet I have seen nothing to convince me that CCSVI even exists and if it does that it has anything to do with MS. Other people have different opinions and that is fine. If more research is done and an association between MS and CCSVI is shown and it is proven that "opening up veins" stops progression or cures MS I will be the first in line.
User avatar
scorpion
Family Elder
 
Posts: 1323
Joined: Wed Nov 05, 2008 4:00 pm

Hi Bad Copy - Basically new here - Share your views

Postby leooreo » Mon Aug 09, 2010 5:17 pm

I use to donate lotsl of money to MS S.. Now I would like it back for ccsvi. It is a little frustrating not to be able to speak freely w/o offending those that are put here scope things out. . my posts have vanished.

scorpion - Have you been tested for ccsvi yet.
User avatar
leooreo
Getting to Know You...
 
Posts: 23
Joined: Fri Aug 06, 2010 3:00 pm

elliberato

Postby leooreo » Mon Aug 09, 2010 5:20 pm

elliberato

It's called capitalism - business of sick people.
User avatar
leooreo
Getting to Know You...
 
Posts: 23
Joined: Fri Aug 06, 2010 3:00 pm

Next

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service