This Is MS Multiple Sclerosis Community: Knowledge & Support

Finally some facts that make sense. impeded Blood flow to brain and heart. Deoxygenated blood, can't escape completely, REFUX, inflammation (pus), lesions. Society wants to stay in business to provide you with wheelchairs and respite care and MANAGE BEING NEAR CRIPPLED OR WORSE – This ccsvi procedure (When perfected, hopefully soon) will end many careers at the society as well as tens of billion $$$$ from the drug companies and neuro.. that bank of your repeat business from insurasnce monies. So what if it does not last years do it again. they will perfect this procedure. FINALLY, A PROCEDURE THAT COMBATS SYMPTOMS. Blood Nourishment back to atrophied body will take time to heal. EAT RIGHT. STOP EXPECTING IMMEDIATE GRATIFICATION AND BE VOCAL AND FIGHT FOR THIS PROCEDURE TO BE PERFECTED. VASCULAR surgeons, etc. ARE LEARNING AS FAST AS THEY CAN. Don't donate to MS SOCIETY. ONLY TO WHERE THEY ARE DOING RESEARCH TO SAVE YOU FROM BEING CRIPPLED.

HARSH REALITY - BUT THE TRUTH.

The pushback is strong. Don’t give a dime to MS Society. MS SOCIETY AND THE EMPLOYEES (30,000 OR SO)IT IS A CONSPIRACY. FIGHT, FOR JUSTICE.

Right

Just a FYI for the new people coming to this forum. There are a couple of people on the fringe who actually believe what is written above makes sense but most of us fall between having serious doubts about CCSVI to those who believe it is the real deal and want more research to prove it. Sorry but occasionally posts like this appear but hey this is an open forum!

Scorpion said" but hey this is an open forum!


Of course this open forum is the one that carries most hope for us MS'ers
with more than ample discussions on the merits of CCSVI liberation
procedure. As a canadian our health care system have invested more than $100,000 for my rehabilitation from Avonex for a year, Rebif 44 for another then on chemo for three years, all with the blessing from Ms Society and my Neuro. Results: Nothing, Nada, I'm a patient with SPMS now for the last 4 years going downhill by the month.
Now we have a new hope with the CCSVI procedures that we read the success stories from their treatment. Sure research is needed but for its cost research can be done in conjunction with treatment at the same time.
Saskatchewan has committed itself to a trial for all their MS patient with treatment to boot. Who would not applaud such a decision especially from those having MS.
Hope is all we have at this point with many having had the procedure are living their hope as realities on the good side.

I say this forum is for people from all over the world to share their good experiences with the liberation as it is refreshing to see their courage embracing this new procedure and come back here posting their experience whether bad or good but for quite a few mostly good causing the Ms Societies and narrow minded Neuros a disturbance above their comfort level.

Take Care All

Norm
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_________________
In a perfect world, my Neuro would like to be a vascular specialist.
'92 diag RR - '05 SP

You act as if the MS Society exists only to push treatments. I have volunteered with them and can say that they provide so many needed services to MSers like giving legal assistance, financial help and even the simple act of answering a PwMS's question. The majority of the staff have much more vested with this organization than just a paycheck. Take a step back and look at the big picture.

removed double plosting

Although my opinions regarding the MS Society and their role differ from your own, I will not even attempt to dissuade you from your beliefs as you are obviously passionate about how you feel.

However, I would like to simply ask that you refrain from calling people [removed]. Antagonizing people with MS is not the correct way to share your views.

.

I am logical in my thinking. Research oriented.

leooreo quote removed


Oreo, Curious...How did you become such a self proclaimed expert on the inner working of the MS Society? Are you involved there? You seem to be a very scorned person. I feel bad for you that you must deal with this anger. I am not sure your situation but if you suffer from MS harboring such anger will not make you feel any better. I am glad however that you were able to get this all off your chest. [comment removed]

leooreo quote removed

[comment removed]

leooreo quote removed

Wow-this is a very strong statement. Is this the logical research you refer to? [comment removed]

I don't waste my time arguing with them oreo. People believe what they want to believe. I stopped giving to the MS society a while ago. The drugs put out there surpress some symptoms in some people some of the time. They never claimed to be a cure and they never will be. My money will be with CCSVI from here on out.

The more I research the history of the research that has been on MS it becomes painfully obvious that Vascular is a huge part of the answer not auto immunolopy. Drugs are good for a little but only until you find the underlying issue. And it appears we are approaching that stage now.

someone is taking out my posts. Why - I have right to post my opinions. Real facts is we need. not people from ms society - scanning the posts.

Scorpion - have you been tested for ccsvi?

No I have not and I am not interested in getting tested. As of yet I have seen nothing to convince me that CCSVI even exists and if it does that it has anything to do with MS. Other people have different opinions and that is fine. If more research is done and an association between MS and CCSVI is shown and it is proven that "opening up veins" stops progression or cures MS I will be the first in line.

I use to donate lotsl of money to MS S.. Now I would like it back for ccsvi. It is a little frustrating not to be able to speak freely w/o offending those that are put here scope things out. . my posts have vanished.

scorpion - Have you been tested for ccsvi yet.

elliberato

It's called capitalism - business of sick people.