216. July 26, 2010 8:15 pm Link
The definitive website for CCSVI information is now up and running: http://www.ccsvi.org
. Created by CCSVI Alliance, a nonprofit organization founded by MS patients who have been treated for CCSVI (and one spouse), it is the go-to place for the latest on CCSVI, whether you’re a patient, health professional, caregiver, reporter, student…. whatever. A fabulous resource. (And no, I have no affiliation with it, aside from being a grateful user.)
— Eileen Gavin McKenna
217. August 10, 2010 12:48 pm Link
I would advise anybody who has been told they have ‘MS’ to seek and get the Liberation procedure, paid for by many insurance providers. It is a congenital, vascular disease. It shares symptoms (and virtually identical procedures for treatment, in some cases) with other diseases, which are also covered. Interventional Radiologists are gearing up to treat CCSVI. There are books being written to assist them. Vascular surgeons are doing the procedure, too, lead by one of the finest, Dr. Mehta, of New York State. Doctor Sclafani, Bronx, New York, NY, has come out of retirement and resigned his post at a hospital (he is still Chairman of Radiology at SUNY) to help these people.
Drs. Dake of Stanford University and Zivadinov of the University of Buffalo, are neurologists, who with many others have been developing this work to perfect the procedure and our knowledge of its effects.
Perhaps this patient population is too large for this country to afford in these tough economic times (though there are also arguments about false economy).
The government of Kuwait, to where many of our Petro-Dollars flow, is in the process of Liberating its 6000 citizens who need it. I hope we are remembering the 10 Americans who die every day with this disease, and the one Canadian.
— Chris Sullivan
218. August 10, 2010 2:27 pm Link
Where do you guys get your meds that cheap? Drug co’s are worried about losing $90K per patient bottom line. My meds are $7500 a month for Betaseron. I WILL have the treatment done. Give me some of that placebo!
— Paul Krwawecz